Neuroendocrine Tumors (NETs): Discussions | Page 4

I have been on Lanreotide for 11 months now, and Octreotide for the previous 13 years....

https://connect.mayoclinic.org/comment/826838/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

Hello 👋🏻 My treatment was with Octreotide (Sandostatina LAR30) One each 4 weeks, 18 doses. Between...

https://connect.mayoclinic.org/comment/794591/

Discussion: PET Ga-68 Scan Scheduling vs. Most Recent Lanreotide Injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2023

@tennisfan I hope that the Octreotide injections are helpful to you in managing the carcinoid symptoms...

https://connect.mayoclinic.org/comment/806381/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2023

Hi Teresa, Thanks for following up. I have surgery scheduled for October 21st to have the...

https://connect.mayoclinic.org/comment/636553/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2021

BTW, I’m in the Cam2029 Clinical Trial at Mayo/Jacksonville and tolerating biweekly octreotide injections very well...

https://connect.mayoclinic.org/comment/1065502/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

My octreotide injections are scheduled every 28 days, and my next 3 are on the calendar.....

https://connect.mayoclinic.org/comment/901161/

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Thanks @hopeful33250 ! The PET was negative, I did a 5-day trial of short acting Octreotide...

https://connect.mayoclinic.org/comment/271268/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2019

@mieczyslaw @californiazebra Good morning. Like Mieczyslaw, I have the same diagnosis and am also taking Sandostatin...

https://connect.mayoclinic.org/comment/962656/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

My surgeon suspects that I have a carcinoid tumor in my intestine and is going to...

https://connect.mayoclinic.org/comment/802671/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

I was diagnosed in April 2002 and have had monthly Sandostatin injections starting in 2008 and...

https://connect.mayoclinic.org/comment/90133/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

That's great news! Thanks for updating us. I know you indicated that she has an oncologist...

https://connect.mayoclinic.org/comment/1360503/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31 7:47am

Hi, who iz your oncologist? I see Dr. Diane Reidy-Lagunes and Lindsay Juste (at 53rd Street)...

https://connect.mayoclinic.org/comment/812159/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

I have two carcinoid tumors on my liver and they have been there for many years....

https://connect.mayoclinic.org/comment/1111420/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Anyone diagnosed with DIPNECH? I’ve had 3 injections of Octreotide so far. I started having GI...

https://connect.mayoclinic.org/comment/1193098/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2024

Hello @pennypowell I'm glad to hear that she wants to see another oncologist. You mentioned that...

https://connect.mayoclinic.org/comment/799643/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

In addition to my chronic cough, I had issues with mucous and shortness of breath upon...

https://connect.mayoclinic.org/comment/1250966/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 11:07am

Did the doctors give you any thoughts on why the tumors were growing fast when you...

https://connect.mayoclinic.org/comment/1344033/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8 8:58pm

Hello @sophiarose I appreciate your reply to @dbmenger about your difficulties with Lanreotide and Octreotide. It...

https://connect.mayoclinic.org/comment/1249618/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3 2:28pm

My husband started with emboliztion but I have read that PRRT is being considered as a...

https://connect.mayoclinic.org/comment/1087600/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

Hello @pattirushing I'm glad to hear that you have completed the initial treatment for the lung...

https://connect.mayoclinic.org/comment/847375/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

Neuroendocrine Tumors (NETs) Support Group