Neuroendocrine Tumors (NETs): Discussions | Page 4

Yes I’m on the Lanreotide injection every 28 days. I started February 10th 2021.

https://connect.mayoclinic.org/comment/1285659/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 6:46pm

@tattyk, checking in. How is it going so far with lanreotide treatment? How are you doing?

https://connect.mayoclinic.org/comment/1113992/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 29, 2024

Me, too💜🦓. Diagnosed in 12/22. Still alive on Somatouline/Lanreotide

https://connect.mayoclinic.org/comment/1299116/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7 1:21pm

@destinjim: Your symptoms sound so familiar, Lanreotide injections slowly relieved these symptoms for me; however, I...

https://connect.mayoclinic.org/comment/1467863/

Discussion: Lanreotide side effects

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

KC, What protocol will the doctor limit to 2 years? The CAPTEM or the Lanreotide? Thanks.

https://connect.mayoclinic.org/comment/1110425/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2024

I just went last week. On lanreotide but dentist was not concerned. Hope that helps

https://connect.mayoclinic.org/comment/1175256/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2024

So, are you saying thst the Lanreotide increased the growth of the tumor in your case?

https://connect.mayoclinic.org/comment/928853/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2023

I have a PET scan every six months. I have a Lanreotide injection once a month.

https://connect.mayoclinic.org/comment/1354102/

Discussion: Initial imaging and tests; what to expect after initial NETs diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22 3:59pm

It sounds like the Octreotide therapy works for you. Was there any surgery done before the...

https://connect.mayoclinic.org/comment/901727/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2023

@dbamos1945, I appreciate you sharing your experience and your thoughts on Lanreotide and its benefits!

https://connect.mayoclinic.org/comment/1251146/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 2:29pm

@spelleti00 Per Ipsen pharmaceutical the manufacturer, my reaction was due to the inaccurate administration of Lanreotide...

https://connect.mayoclinic.org/comment/1404698/

Discussion: Lanreotide shot given too fast, any side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29 5:11pm

I quit talking the lanreotide shots after a year because I felt it gave me more...

https://connect.mayoclinic.org/comment/933110/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

@sarahfloranne, Sorry to hear you’ve had this side effect to the Lanreotide - which unfortunately is...

https://connect.mayoclinic.org/comment/876306/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

Does long-term Lanreotide 120g monthly injections due any harm to patient or does it continue to...

https://connect.mayoclinic.org/comment/1004493/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2024

Several on this site who were taking lanreotide injections shared their experiences with dietary issues and...

https://connect.mayoclinic.org/comment/908769/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6, 2023

I am on Creon. It was prescribed to me after surgery. I had a very large...

https://connect.mayoclinic.org/comment/952517/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

@dbamos1945 Thanks for sharing. Great to hear PRRT was working for you it is likley my...

https://connect.mayoclinic.org/comment/1425169/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28 10:09am

@pennypowell Lanreotide is similar to Octreotide and should help with symptoms. Many members of this discussion...

https://connect.mayoclinic.org/comment/799802/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

@pipo It's a long list. Distal Pancreatectomy Y90 to both lobes of liver Octreotide/Lanreotide Cyberknife to...

https://connect.mayoclinic.org/comment/1407713/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3 4:05pm

https://www.ipsencares.com/somatuline-depot-patient-support This is where you will find the program from Ipsen which helps patients get access...

https://connect.mayoclinic.org/comment/1423533/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25 11:48pm

Neuroendocrine Tumors (NETs) Support Group