Neuroendocrine Tumors (NETs): Discussions | Page 39

The only effect I have with carcinoid syndrome is flushing heat , my face and ears...

https://connect.mayoclinic.org/comment/843667/

Discussion: Differentiating Carcinoid syndrome from MCAS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

I should mind my own business However! I have had 4 different options if there is...

https://connect.mayoclinic.org/comment/1028520/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6 8:16am

I had all the NET at a before being diagnosed, probably for 5 years they CAT...

https://connect.mayoclinic.org/comment/1057160/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 12:35pm

Thank you some much for posting the video! Gave me a lot of answers. I am...

https://connect.mayoclinic.org/comment/766068/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2022

Hello @marifersitacastro and welcome to Mayo Clinic Connect! I appreciate you posting on behalf of your...

https://connect.mayoclinic.org/comment/612483/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2021

@jenniferrasigade I'm so glad that you posted again. I hope that your surgery goes well. Tumors...

https://connect.mayoclinic.org/comment/971201/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Hi My sugars dropped to 37 last July when I passed out in my car....found the...

https://connect.mayoclinic.org/comment/811873/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Hello @margaret12 and welcome to Mayo Clinic Connect. You have asked many questions about liver Mets...

https://connect.mayoclinic.org/comment/748814/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Thanks @helpful33250 (great name) I just had my first shot of Lanreotide on 08/18 and yes,...

https://connect.mayoclinic.org/comment/921461/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2023

There are some limitations on it, for it's use now that it is FDA approved. It...

https://connect.mayoclinic.org/comment/1015375/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 9:27pm

In 2000 I had 2 pituitary tumor operations. Large tumor, but they had to take out...

https://connect.mayoclinic.org/comment/780134/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2022

I’ve had 5 lanreotide shots and side effects less each time. Bloating is certainly one of...

https://connect.mayoclinic.org/comment/864105/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2023

You are welcome Teresa. I remember when I first got diagnosed 8/22/2022. Thee lead Doctor came...

https://connect.mayoclinic.org/comment/878357/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 14, 2023

Hi, I’m Alina from Sherman Oaks in the San Fernando Valley near LA. After two years...

https://connect.mayoclinic.org/comment/1170361/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8 7:43pm

Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...

https://connect.mayoclinic.org/comment/857723/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

For both of the 72 hour fasts, the endocrinologist ordered. The first was done in the...

https://connect.mayoclinic.org/comment/807790/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Hello, @netofliver8550 and welcome to Mayo Connect. I am sorry to hear about your liver NETs...

https://connect.mayoclinic.org/comment/333405/

Discussion: NET Stomach Discomfort

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2021

Thanks for the prompt reply kim1965. I appreciate the additional information and will definitely discuss with...

https://connect.mayoclinic.org/comment/932814/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Good morning to (hello it’s me) I was diagnosed Dec. 2022.. started in small intestine and...

https://connect.mayoclinic.org/comment/851326/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

I have liverNET cancer. I was diagnosed almost one year ago. I had 4 intense chemo...

https://connect.mayoclinic.org/comment/963078/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Neuroendocrine Tumors (NETs) Support Group