Neuroendocrine Tumors (NETs) Support Group | Page 39

My NETs was found during an episode of jaundice, where a bile duct was blocked by...

https://connect.mayoclinic.org/comment/755807/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue,...

https://connect.mayoclinic.org/comment/1025991/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

Wow--thanks for asking! On a practical level, radiation will be done at my local regional cancer...

https://connect.mayoclinic.org/comment/819982/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Maureen, good topic! I have been fortunate that I don't have to take a lot of...

https://connect.mayoclinic.org/comment/196545/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 17, 2018

You are brave your brave enough to realize your having an imbalance that is bring you...

https://connect.mayoclinic.org/comment/1483251/

Discussion: How do you mentally handle reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15 4:43pm

Hi, I was in middle of this and my msg just disappeared..lol but anyway, no my...

https://connect.mayoclinic.org/comment/1296038/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2025

Have your doctors discussed having Lutathera treatment? My husband has Stage 4 NET that started in...

https://connect.mayoclinic.org/comment/1505529/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 10:49am

I was diagnosed in January 2020–grade 3, well-differentiated, pancreatic primary with mets to liver, lungs, parotid...

https://connect.mayoclinic.org/comment/1528856/

Discussion: Folfox side effects very difficult, ideas to manage?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 8:52am

Thank you all. This is really helpful. I should’ve been clear that I don’t have NETs....

https://connect.mayoclinic.org/comment/1532445/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 11:43pm

@jessie1990 Thanks for asking! I've been having some breathing problems, which appear to be asthma, but...

https://connect.mayoclinic.org/comment/1500570/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 8:48pm

I had a lot of foot and ankle swelling in the hospital. It got worse after...

https://connect.mayoclinic.org/comment/1529903/

Discussion: Liver NETs: Anyone has extreme swelling in feet and ankles?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 12:25pm

@jessie1990 I don't know if one is easier than the other. The initial goal is to...

https://connect.mayoclinic.org/comment/1530896/

Discussion: What's the difference between typical lung carcinoids and GI?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 5:26pm

CONFESSION With the Ice/snow weekend. I WAS BAD I had too much processed junk food. I...

https://connect.mayoclinic.org/comment/1493126/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 29 7:11am

I’d had GI issues for years, never mentioned it to doctors. I was diagnosed Lactose intolerance...

https://connect.mayoclinic.org/comment/303673/

Discussion: NETs, Toilet Paper, a rant and a little humor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2020

On me, they only biopsied one. I have no idea how or when they even found...

https://connect.mayoclinic.org/comment/1449386/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2025

@tomrennie I saw the surgeon today, and he now thinks because I have a small ribcage,...

https://connect.mayoclinic.org/comment/1431012/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...

https://connect.mayoclinic.org/comment/1351342/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2025

Thank you its all so new to me all these medical terms😀because I'm in the UK...

https://connect.mayoclinic.org/comment/1330748/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2025

Lungs, inoperable, recent chest x ray picked up something on thyroid. I will have a Pet...

https://connect.mayoclinic.org/comment/1321199/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

I wish I could say something really positive to help you. I am just not sure...

https://connect.mayoclinic.org/comment/1287239/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025