Neuroendocrine Tumors (NETs) Support Group

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Comments (2,370)

I suppose it is possible that the nets will travel back to the liver if they...

https://connect.mayoclinic.org/comment/1336421/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2025

I am awaiting consultation with doctors at Cleveland Clinic. Medicare does pay because it is FDA...

https://connect.mayoclinic.org/comment/1180658/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Nov 27, 2024

I have multiple liver lessions too that have different characteristics, I’m not comfortable about it especially...

https://connect.mayoclinic.org/comment/829662/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

i appreciate your sharing. Were your tumors growing and that is why they gave you 4...

https://connect.mayoclinic.org/comment/1344045/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8, 2025

tks for yr reply my husband is treated since 2020 with Octeotride injection, once a month...

https://connect.mayoclinic.org/comment/1317332/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2025

There's a good chance of you having both treatments when all is said and done. For...

https://connect.mayoclinic.org/comment/1380088/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2025

You're very welcome. Like liver transplantation nets, especially high grade NEC really requires a specialist. If...

https://connect.mayoclinic.org/comment/1328792/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2025

How well are you doing on the Cap/Tem? Her oncologist said that it will make her...

https://connect.mayoclinic.org/comment/880790/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

Thank you. I'm so new to this. Saw oncologist for first time this afternoon. They're sending...

https://connect.mayoclinic.org/comment/796316/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

Not sure where your primary is. Mine is located in Duedenum and metastasis to liver, lymph...

https://connect.mayoclinic.org/comment/1453505/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2025

Hi all, I’m new to this forum and this condition. Started with GI pain and inconsistent...

https://connect.mayoclinic.org/comment/876745/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2023

I have pancreas to liver NET. The chemotherapy drug I was on was Flofox and a...

https://connect.mayoclinic.org/comment/825587/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2023

Well I got my news early and the 2 cm spot on my liver is indeed...

https://connect.mayoclinic.org/comment/783362/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

P.S. I was given 3 to 5 years initially. A lot of what oncologists say about...

https://connect.mayoclinic.org/comment/772405/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Hi, I have Landrotide injection every month from August /2022, only skip it when I have...

https://connect.mayoclinic.org/comment/1302197/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2025

I am curious as to your symptoms. I have stage 4?carcinoid metastasis in the liver and...

https://connect.mayoclinic.org/comment/1266749/

Discussion: Grade 3, poorly differentiated duodenal NET metastasized to liver-

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2025

Well differentiated, grade 2, neuroendocrine tumors in tail of pancreas and spread to some lobes of...

https://connect.mayoclinic.org/comment/1265518/

Discussion: Well differentiated Neuroendocrine Grade 2 in rectum

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2025

Hi. I have a loved one who is dealing stage IV liver tumor. They're in so...

https://connect.mayoclinic.org/comment/1198390/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Dec 27, 2024

I had both sides of my liver done I found eating small meals multiple times a...

https://connect.mayoclinic.org/comment/977500/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

At 14 cm and 3% ki67 that thing was most likely there a loooooong ttime. The...

https://connect.mayoclinic.org/comment/1349618/

Discussion: 14 CM PNET w/ one year post resection. When will I see reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2025

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