Neuroendocrine Tumors (NETs) Support Group

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Hello @avawein I appreciate knowing the date of your surgery. I will be thinking (and praying)...

https://connect.mayoclinic.org/comment/636588/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2021

https://www.mayoclinic.org/medical-professionals/endocrinology/news/hypoglycemia-role-for-the-selective-arterial-calcium-stimulation-test/mac-20439062 Good luck with all of your testing! Above is an article from Mayo that was...

https://connect.mayoclinic.org/comment/891421/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7, 2023

Wow that is good news for you. I have a similar yet different situation. Merkel showed...

https://connect.mayoclinic.org/comment/1034000/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15 10:41am

Hi Teresa, We did a PET scan within the first month of discovering the tumors. It...

https://connect.mayoclinic.org/comment/804496/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

I was diagnosed in 2003 with an unknown primary (still not found) and tumors in my...

https://connect.mayoclinic.org/comment/762517/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Sorry to hear of your condition. If you only have 1 tumor on your liver you...

https://connect.mayoclinic.org/comment/805950/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2023

Phyllisden, thank you for the information. At this time, I will continue with no diet restrictions...

https://connect.mayoclinic.org/comment/1148212/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27 11:57am

Hi Bob and Welcome! I read your other post regarding your insulinoma metastasis to the liver....

https://connect.mayoclinic.org/comment/806558/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

So relieved to find people with this frustrating disease process. I was beginning to think I...

https://connect.mayoclinic.org/comment/135496/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2017

When I was diagnosed that my NET had come back 2 1/2 years after my liver...

https://connect.mayoclinic.org/comment/822159/

Discussion: Stage 4 Carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2023

My husband on 1/22/2022 was diagnosed 3 mm carcinoid tumor in his small intestines. We found...

https://connect.mayoclinic.org/comment/1003703/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 3:43pm

@margaret12 I had fatigue and stomach issues (cramping and diarrhea) off and on beginning in August....

https://connect.mayoclinic.org/comment/812472/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Welcome and thanks, Margaret for the questions! To respond to your questions: My PET/CTs have been...

https://connect.mayoclinic.org/comment/807203/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Hi rockchick. Congrats on your successful surgery. I can understand that you are scanned out. I...

https://connect.mayoclinic.org/comment/813394/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

On a Thursday a MRI on my prostrate showed suspicious cancer in the small intestine my...

https://connect.mayoclinic.org/comment/750473/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

I hope my comments helped. Good luck. You have nothing to lose by trying dietary restrictions....

https://connect.mayoclinic.org/comment/854487/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Very similar symptoms. Stomach pain, constant diarrhea, and always feeling sick that got progressively worse over...

https://connect.mayoclinic.org/comment/951274/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

What type of embolization did you have? Did it include radiation? I have been on lanreotide...

https://connect.mayoclinic.org/comment/977539/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...

https://connect.mayoclinic.org/comment/1035643/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 8:48am

Sorry to ask for more specifics, but when you say right sided abdominal pain, is it...

https://connect.mayoclinic.org/comment/137541/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

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