Neuroendocrine Tumors (NETs): Discussions | Page 37

I was diagnosed with NETs last year. My case is a bit unusual since it seems...

https://connect.mayoclinic.org/comment/804124/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Hello @marilyn2525 I so appreciate the information you provided. I have had three surgeries for NETs...

https://connect.mayoclinic.org/comment/134694/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2019

I did 6 months of chemo, every 2 weeks. I never heard of it shorting your...

https://connect.mayoclinic.org/comment/817375/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Teresa and @carcinoid, Dr Anthony told me the 24-hr urine test was not helpful for rectal...

https://connect.mayoclinic.org/comment/184538/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2018

Hi, Did they do a PET scan ? I have stg 4 grade 1 Pnet and...

https://connect.mayoclinic.org/comment/902658/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2023

My surgeon told me the same thing. My surgery was successful...distal pancreatectomy, spleenectomy, and cholecystectomy. Tissue...

https://connect.mayoclinic.org/comment/977114/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 8, 2023

i actually feel good since surgery. I have had check up every 6 months since surgery....

https://connect.mayoclinic.org/comment/1065049/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9 5:52pm

@kim1965 , I had similar surgery ( distal pancreatectomy, with gallbladder, spleen removal, some metastatic spots...

https://connect.mayoclinic.org/comment/817936/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2023

Hello @hollywood817 and welcome to the NETs discussion group on Mayo Connect. I see from your...

https://connect.mayoclinic.org/comment/804933/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

@smdoonan Your last sentence about consistently done at the same lab is probably the important factor....

https://connect.mayoclinic.org/comment/179374/

Discussion: CGA (Chromogranin) results from different labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2018

Thank you for sharing. my husband has P-NET. and was getting Sandostatin shots monthly, they gave...

https://connect.mayoclinic.org/comment/853060/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2023

Thanks for the reply Scott. I too am having a 6 mos post surgery follow up...

https://connect.mayoclinic.org/comment/847654/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

Hi, Surgery, July 2022, was at Hartford Hospital in Connecticut. There was no spread of disease...

https://connect.mayoclinic.org/comment/953818/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Hello @physedr and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/1076299/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 9:40am

My husband has one tumor on his pancreas and “innumerable” lesions in his liver. They started...

https://connect.mayoclinic.org/comment/831010/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Jeannie, take a deep breath, you are among many of us that have gone down this...

https://connect.mayoclinic.org/comment/1068055/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14 8:49pm

My wife has a multi-disciplinary team with a NET Specialist, and even after all the treatment...

https://connect.mayoclinic.org/comment/1056767/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 4:05am

Diagnosed in 2019 I’m now 65 have a pancreatic net that metastasis in the liver. Tumor...

https://connect.mayoclinic.org/comment/1110111/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22 5:39pm

Hello folks, currently being treated at City Of Hope. 10 cm tumor incidentally found on GI...

https://connect.mayoclinic.org/comment/808685/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

Hello @meppard I can understand your frustration about missing the RovaT trial and also losing time...

https://connect.mayoclinic.org/comment/184366/

Discussion: Treatment for Stage IV Ampullary Cancer

Support Group: Cancer

Posted: Feb 8, 2018

Neuroendocrine Tumors (NETs) Support Group