Neuroendocrine Tumors (NETs) Support Group

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Comments (881)

I had full surgery not keyhole to remove a 5x3cm typical carcinoid stage 2a 11 years...

https://connect.mayoclinic.org/comment/1433982/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2025

I have a Lung NET that has spread to one of my lymph nodes. Was told...

https://connect.mayoclinic.org/comment/861198/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

The biopsy on it was completed 2 years ago before my hysterectomy, the Dr. who did...

https://connect.mayoclinic.org/comment/1078008/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2024

Hello, I am new to the site and I was diagnosed with a NET in the...

https://connect.mayoclinic.org/comment/916801/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

You are brave your brave enough to realize your having an imbalance that is bring you...

https://connect.mayoclinic.org/comment/1483251/

Discussion: How do you mentally handle reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15 4:43pm

My situation sounds a little similar in that they marked my tumor from a CT scan...

https://connect.mayoclinic.org/comment/944168/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

I wrote you a very long detailed reply to help you and some how it got...

https://connect.mayoclinic.org/comment/911496/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2023

Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...

https://connect.mayoclinic.org/comment/851198/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

@azkidney57 - Good afternoon. You are so lucky to be cancer free right now! Scanxiety is...

https://connect.mayoclinic.org/comment/233070/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 19, 2019

Hello @hopeful33250 I have no problem in sharing my experiences at all. I was initially experiencing...

https://connect.mayoclinic.org/comment/917370/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

@gmapam Your NETs oncology team should be able to tell you. You need to have somatostatin...

https://connect.mayoclinic.org/comment/912394/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2023

Hello, In May '22, after surgery to remove a tumor in my right lung and a...

https://connect.mayoclinic.org/comment/823582/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

Hi , welcome to the DIPNECH club 🥴. You’ve come to the right place! I also...

https://connect.mayoclinic.org/comment/1392355/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2025

Banner Health Patient: JAN COMPUTED TOMOGRAPHY Report: Noncalcified pulmonary nodules some of which is detailed below....

https://connect.mayoclinic.org/comment/1221647/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2025

Hello @paula7 and welcome to Mayo Clinic Connect. Most folks with a diagnosis of neuroendocrine (NET)...

https://connect.mayoclinic.org/comment/828882/

Discussion: Anyone else have neuroendocrine cervical cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Welcome @odikaflog to Mayo Connect. When I wrote "we" I was trying to include everyone, but...

https://connect.mayoclinic.org/comment/232752/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 9, 2018

Hi Emily, My strength after the lobectomy was slow at the beginning. My surgery was September...

https://connect.mayoclinic.org/comment/975317/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2023

Hi Jeff, I'm so sorry to hear of your cancer and other issues! That must be...

https://connect.mayoclinic.org/comment/1470965/

Discussion: Anyone have anything to share on Neuroendoscopic SCLC? In hospice

Support Group: Lung Cancer

Posted: Dec 30, 2025

Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....

https://connect.mayoclinic.org/comment/1198328/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

JULY 22 I was diagnosed with uterine cancer adenocarcinoma and had a hysterectomy, no node or...

https://connect.mayoclinic.org/comment/1076685/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

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