Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,247 total results

Comments (2,056)

Patrick, I would like to know more about your regimen and diet. I was diagnosed this...

https://connect.mayoclinic.org/comment/776233/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Yes it is. My three large tumors on my pancreas are about half the size in...

https://connect.mayoclinic.org/comment/836328/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

Do any of You had 11C-5-hydroxy-tryptophan PETCT or know if Your facilities offer it. What was...

https://connect.mayoclinic.org/comment/807185/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

The VA said they tested and said they were not related.....I am finished treatment, the VA...

https://connect.mayoclinic.org/comment/284785/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 21, 2019

I had y-90 treatment on both sides of my liver. Mapping was done and couple weeks...

https://connect.mayoclinic.org/comment/1174717/

Discussion: Radioembolization Is My Next Step

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2024

Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas...

https://connect.mayoclinic.org/comment/1304507/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15 7:57am

I’m sorry you’re going through this. My husband had the same surgery except for the liver...

https://connect.mayoclinic.org/comment/992356/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2024

I would also recommend you have both types of petscans done. It took 5 years to...

https://connect.mayoclinic.org/comment/932546/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

We just met up with the oncologist. Actually the same Dr. that had treated a family...

https://connect.mayoclinic.org/comment/1219187/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 4:46pm

Not sure what type of radiation they want you to have? I had high dose radiation...

https://connect.mayoclinic.org/comment/1244760/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24 3:26pm

Thanks for answering. My husband was diagnosed because he had an acute pain which took us...

https://connect.mayoclinic.org/comment/1276684/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 7:38pm

I am recently diagnosed with metastatic neuroendocrine tumors in my liver. No know origin. Grade 2...

https://connect.mayoclinic.org/comment/1171826/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

@gismole1: how has your histotripsy treatment been - both in side effects and scan results? Please...

https://connect.mayoclinic.org/comment/1158735/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2024

I have an unknown primary NET maybe intestines It has metastasized to my liver periportal lymph...

https://connect.mayoclinic.org/comment/943430/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

Unfortunately, I was not accepted to the trial study (COMPOSE). In addition to neuroendocrine cancer in...

https://connect.mayoclinic.org/comment/839259/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2023

I too have an occasional glass of wine or 2 when out for dinner with friends.....

https://connect.mayoclinic.org/comment/1231279/

Discussion: How does Alcohol use affect Liver NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 7:20am

Hello @beachboyarkansas and welcome to the NETs support group on Mayo Connect. I really appreciate you...

https://connect.mayoclinic.org/comment/1111157/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2024

I have an unknown primary mine has spread to my liver spine and ribs I have...

https://connect.mayoclinic.org/comment/980862/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

Hi Teresa, Dx was in 2009 when I went to the ER with worse headache I...

https://connect.mayoclinic.org/comment/933446/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

I also have stage 4 Neuroendocrine in the body pancreas along with small spots on my...

https://connect.mayoclinic.org/comment/796911/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

Breast Cancer

7145

22 minutes ago

Cancer: Managing Symptoms

4914

49 minutes ago

Melanoma & Skin Cancer

561

1 hour ago

Digestive Health

16349

1 hour ago

Visiting Mayo Clinic

5932

2 hours ago