Neuroendocrine Tumors (NETs): Discussions | Page 36

Chemo worked for me with my pnet. I was on CAPTEM for 13 months and now...

https://connect.mayoclinic.org/comment/1030195/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8 10:04pm

I forgot to mention there are no support groups here because it’s somewhat secluded (like the...

https://connect.mayoclinic.org/comment/184514/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2018

Many factors to consider—grade of tumors, locations, whether well-differentiated or poorly differentiated. A close friend of...

https://connect.mayoclinic.org/comment/861020/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Hi Nana120 I can relate to you. I am having my 3rd Lanreotide this week. I...

https://connect.mayoclinic.org/comment/940604/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Hello, my husband was diagnosed with stage four metastatic PNET cancer last October. He has a...

https://connect.mayoclinic.org/comment/866675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Hello. Diagnosed almost 2 years ago. Had one year of uncontrollable diarrhea. Diagnosed with IBS at...

https://connect.mayoclinic.org/comment/952145/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

I was diagnosed with a PNET in 11/2022. It is a well differentiated tumor of 1.3...

https://connect.mayoclinic.org/comment/971141/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

@harley4650 I found an article about the two west coast hospitals offering histotripsy -- second link....

https://connect.mayoclinic.org/comment/1047147/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 10:47pm

Hi, I'm new to this group. Was dx Dece. of 2021 after developing a bowel obstruction....

https://connect.mayoclinic.org/comment/826685/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

Hi Kim I'm so excited for you! I go to the MD Anderson here in az...

https://connect.mayoclinic.org/comment/802382/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

@colleenyoung Thank you so much for welcoming me and for your quick response and encouraging words....

https://connect.mayoclinic.org/comment/777322/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

I had a liver tumor biopsy in October even though the doctors and I all knew...

https://connect.mayoclinic.org/comment/795174/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

My tumors started in the small intestine and metastasized to the liver before I was diagnosed....

https://connect.mayoclinic.org/comment/1072655/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22 9:09am

Just went to the first oncologist appointment. After my doctor discussed with the hospital tumor board...

https://connect.mayoclinic.org/comment/812004/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Funny story went to the hospital years ago and they never found anything other than an...

https://connect.mayoclinic.org/comment/1047775/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9 8:49am

How old are you? Why watch and wait? I had symptoms of GERD and rheumatoid arthritis...

https://connect.mayoclinic.org/comment/1077422/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 29 7:33pm

My pNET is also grade 2 stage 4 with liver metastases. I had my 4th injection...

https://connect.mayoclinic.org/comment/875710/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2023

My first MRI was Dec 2022 when I was diagnosed. PET Scan was January 2023 to...

https://connect.mayoclinic.org/comment/1165530/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30 10:40pm

Hello, I was taking Everolimus 10mg for about 1 month then stopped when I became elegible...

https://connect.mayoclinic.org/comment/942523/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

@outlawcancer It was great to hear to you share your experience with your surgery. Would love...

https://connect.mayoclinic.org/comment/817467/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Neuroendocrine Tumors (NETs) Support Group