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Comments (2,365)
@amongst Dr. Kooby has an amazing resume. That's great. I read that he has expertise in...
https://connect.mayoclinic.org/comment/1500027/
Hi all! This is my first post so I probably won't be brief, but I have...
https://connect.mayoclinic.org/comment/1103421/
The strange thing is after my liver resection was done in 2019 I no longer had...
https://connect.mayoclinic.org/comment/1004730/
Thank you! I'm actually doing good with the octreotide( bi-weekly shots) and hopefully scheduled scans in...
https://connect.mayoclinic.org/comment/1000147/
My problem at first was low sugar levels, as the tumors on my liver got bigger...
https://connect.mayoclinic.org/comment/868557/
Hi! Thank you for your comment. I'm petite, and I think I'm going to change my...
https://connect.mayoclinic.org/comment/1376539/
Yes, it came back with a vengeance, it had metastasized to peritoneal lining, liver, gallbladder, bladder,...
https://connect.mayoclinic.org/comment/1350383/
I would appreciate the name of your Atlanta dr. I am recently diagnosed w metastatic neuroendocrine...
https://connect.mayoclinic.org/comment/1145370/
Thank you I did LACNETS a few weeks ago they were all a wealth of knowledge...
https://connect.mayoclinic.org/comment/1143715/
Just to add on CAP/TEM, it in conjunction with Lanreotide injections, helped my wife reduce her...
https://connect.mayoclinic.org/comment/839791/
Here is an article that I thought you might interesting, about a youngster with NETs who...
https://connect.mayoclinic.org/comment/134557/
I, too, have NET (Ileum), along with several METS. I have been going to Mayo since...
https://connect.mayoclinic.org/comment/134671/
Hello, my name is Cassandra, and I have been diagnosed with a neuroendocrine tumor. However, this...
https://connect.mayoclinic.org/comment/1392898/
Hello @avawein You posted about finding some"hotspots" on your liver after having a CU64 dotatate. I...
https://connect.mayoclinic.org/comment/636362/
It was 1.4 by 1.3 so relatively small. It reduced a 10th if a centimeter and...
https://connect.mayoclinic.org/comment/1358502/
I have continually gotten my lanreotide and have MRIs with contrast on a regular basis for...
https://connect.mayoclinic.org/comment/1169863/
I had NET on the head of my pancreas so the surgery is different from yours....
https://connect.mayoclinic.org/comment/793161/
I have been diagnosed with pNET in December 2022. Grade 3 (Ki=18) with liver metastases (Stage4)....
https://connect.mayoclinic.org/comment/1035345/
Is there a pet scan That cat scan the body to see if there are any...
https://connect.mayoclinic.org/comment/1022418/
After my whipple procedure Mar 2020 my Chromogranin A and Serotonin levels remained higher than normal,...
https://connect.mayoclinic.org/comment/967519/
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