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Public Support Group 756 total results
Comments (689)
Dbamos1945 and bubbles 2023 - Dbamos, your response struck a cord with me as your response...
https://connect.mayoclinic.org/comment/885814/
Hello @markmark007 I appreciate the additional information about Sharon's history with NETs. It sounds like she...
https://connect.mayoclinic.org/comment/745039/
She is 59 years old, still works part time. She started with too many tumors to...
https://connect.mayoclinic.org/comment/1198148/
Your tracking great with being a strong advocate for your son's health with this diagnosis. Our...
https://connect.mayoclinic.org/comment/1288159/
Hello @mamadneuroendocrine and welcome to the NETs support group on Mayo Connect. I'm glad that you...
https://connect.mayoclinic.org/comment/953559/
mgb20, Reading your post was like reading my story - 5 years ago (3/18) I, too,...
https://connect.mayoclinic.org/comment/830736/
I was diagnosed with NET (liver & thyroid) in Sept. 2023. Started Lanreotide shots then and...
https://connect.mayoclinic.org/comment/1404523/
@jutebox42 & @hopeful33250 You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in...
https://connect.mayoclinic.org/comment/1251442/
I wish I had an answer for you, but I doubt that even your doctor can...
https://connect.mayoclinic.org/comment/867084/
@tomrennie After seeing Dr. Hobday at the Mayo Clinic he recommended I take two chemo meds...
https://connect.mayoclinic.org/comment/1432994/
ricki8, I haven't been part of this conversation, but decided to join tonight. I went to...
https://connect.mayoclinic.org/comment/1009722/
Hello @jay1225 and @dorrieb60 I'd like to add my welcome to you both to Mayo Connect....
https://connect.mayoclinic.org/comment/698635/
After 8 weeks of last PRRT treatment, Ga-68 DOTATATE PET/CT was done on Jan 29, 2024,...
https://connect.mayoclinic.org/comment/1007463/
Looking back, I had symptoms of severe diarrhea 5 years before diagnosis. Nightime diarrhea including incontinence....
https://connect.mayoclinic.org/comment/1202313/
Pippa05, I am so very sorry to hear about your struggles. And I appreciate and can...
https://connect.mayoclinic.org/comment/897706/
I was diagnosed almost 2 years ago with NET primary pancreas that metastasized to liver(over 100)...
https://connect.mayoclinic.org/comment/859321/
PRRT is hung up with the FDA approval process. I can't post messages with links yet,...
https://connect.mayoclinic.org/comment/127206/
It’s so hard to generalize one experience to others except as an example. In 2014-15, I...
https://connect.mayoclinic.org/comment/1001387/
@djchambers: I am sorry you are faced with this situation with NET cancer. Most of your...
https://connect.mayoclinic.org/comment/1418984/
He was diagnosed in December 2019, had surgery in March 2020, I think the first six...
https://connect.mayoclinic.org/comment/899229/
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