Neuroendocrine Tumors (NETs) Support Group

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Thanks for sharing. Mine was better by the end of the week. Blood test were run...

https://connect.mayoclinic.org/comment/1210425/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2025

Just following up. I had the calcium stimulation test on Tuesday. The liver was positive for...

https://connect.mayoclinic.org/comment/843297/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Sol, fatty liver seems to be a common problem. I apparently have it as well. I...

https://connect.mayoclinic.org/comment/1376449/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

@kc43, the liver is an amazing organ. I'm glad to hear that it has recovered 70%...

https://connect.mayoclinic.org/comment/1013222/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

Hello @jenntx10 and welcome to Mayo Connect. Is it my understanding that you are sharing an...

https://connect.mayoclinic.org/comment/771344/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

I believe the CT scan is good for finding changes in the size of the tissue...

https://connect.mayoclinic.org/comment/1384574/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2025

I'm petite, and so far I'm keeping the same weight throughout the treatment. My oncologist wants...

https://connect.mayoclinic.org/comment/1376892/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

I don’t know what to say. Mine is an Insulinoma, Pancreas and spread to my Liver....

https://connect.mayoclinic.org/comment/866991/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Thanks 56span. I have heard of this reversal and will raise this with my oncologist regarding...

https://connect.mayoclinic.org/comment/1429366/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2025

I recommend a high quality MRI which is the best modality (although also imperfect) to identify...

https://connect.mayoclinic.org/comment/1315829/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: Archive

Support Group: Pancreatic Cancer

Posted: May 29, 2025

@lully2505 , how might we help guide you through tour upcoming surgery. My wife had a...

https://connect.mayoclinic.org/comment/938747/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

I’m new to this world of Oncology as well. My dx NET tumor with metastasized to...

https://connect.mayoclinic.org/comment/774811/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2022

If you don't mid me asking, What was your grade and stage 11 years ago? My...

https://connect.mayoclinic.org/comment/1285740/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2025

Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....

https://connect.mayoclinic.org/comment/848478/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

I am doing great. On my 11th cycle of just capecitabine. My scan last Friday still...

https://connect.mayoclinic.org/comment/1104625/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2024

Hi, I also have Neuroendocrine of in the body pancreas along with small spots on my...

https://connect.mayoclinic.org/comment/796907/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

My liver had an 8x6cm lesion and my pancreas had an 8x6cm tumor which was my...

https://connect.mayoclinic.org/comment/1205615/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2025

I see Dr Chauhan at UM in Miami and he is excellent and leading authority in...

https://connect.mayoclinic.org/comment/1108755/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2024

@lastround your diagnosis seems so similar to my dads story in the sense of areas affected...

https://connect.mayoclinic.org/comment/834179/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Hi mbg20, My husband has recently had a small bowel resection on Feb 27. He originally...

https://connect.mayoclinic.org/comment/830442/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

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