Neuroendocrine Tumors (NETs): Discussions | Page 32

Support Group: Liver Cancer

Posted: Sep 30 11:28am

Hi Ken, I had a 5 cm PNET removed in March 2023. So, a year and...

https://connect.mayoclinic.org/comment/1083388/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9 7:51am

Hi Stevestenberg31 Your detail was very helpful and I am at a crossroads right now. I...

https://connect.mayoclinic.org/comment/919701/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...

https://connect.mayoclinic.org/comment/800545/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2023

Hi Lenora, I am the leader of The Wisconsin Neuroendocrine Cancer Connection, a group of 163...

https://connect.mayoclinic.org/comment/668825/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2022

Hi Joy (good positive name) I believe your primary source is in your sm. intestine (same...

https://connect.mayoclinic.org/comment/953010/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

My two liver lesions have been on my liver for years. I have one on my...

https://connect.mayoclinic.org/comment/1111587/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 10:34am

@astaingegerdm thank you. My CBC count is starting to show stress on my liver and pancreas...

https://connect.mayoclinic.org/comment/680634/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2022

At present we are trying to calm down the Carcinoid liver cancer by doing a 20...

https://connect.mayoclinic.org/comment/160175/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2017

Outlaw, my wife has almost the same area of pancreas with NET’s mass diagnosed last April....

https://connect.mayoclinic.org/comment/783580/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2022

I've had 2 of my scheduled 4 TACE treatments and the first one really kicked my...

https://connect.mayoclinic.org/comment/866844/

Discussion: TACE Procedure: What is it like?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

I was on everolimus, but drs felt it was not aggressive enough. Have been put on...

https://connect.mayoclinic.org/comment/838525/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

My husband cancer was discovered at grade 3 well differentiated stage 4. He was also given...

https://connect.mayoclinic.org/comment/1100693/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7 6:09am

My primary NET was in the small intestine lining—did not show up in any scans. I...

https://connect.mayoclinic.org/comment/918263/

Discussion: Thank you for your words of encouragement on this journey! Now ???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2023

@gneiss50 I am so pleased that you have had the additional tests as a follow up....

https://connect.mayoclinic.org/comment/809236/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one...

https://connect.mayoclinic.org/comment/806203/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2023

Started with two rounds of CAPTEM. Didn’t work at all. Then did 10 rounds of FOLFIRINOX,...

https://connect.mayoclinic.org/comment/796241/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

Hello, My husband has NETS “insulinoma” also very rare. Pancreas metastasized to liver. He is currently...

https://connect.mayoclinic.org/comment/908363/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6, 2023

Are you having the surgery at the same hospital that misdiagnosed? Surgery is always the best...

https://connect.mayoclinic.org/comment/932587/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Dear stevestenberg31, I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with...

https://connect.mayoclinic.org/comment/846399/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

Neuroendocrine Tumors (NETs) Support Group