Neuroendocrine Tumors (NETs) Support Group

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I had intestine resection to remove discover nets in my intestines. Removal of ovaries to remove...

https://connect.mayoclinic.org/comment/1425191/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2025

My doctor told me to never drink any alcohol I had surgery 18 years ago had...

https://connect.mayoclinic.org/comment/1403032/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2025

I'm so lost and scared! I have taken a PET scan and an MRI. It's suspicious...

https://connect.mayoclinic.org/comment/1394166/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2025

HI - Has anyone received the HistoTripsy treatment --> In our case, my father , around...

https://connect.mayoclinic.org/comment/1243011/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Feb 22, 2025

I go to Moffitt in Tampa. I get santosattan. (sp) I have 23 tumors on my...

https://connect.mayoclinic.org/comment/881449/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

My primary tumors removed have over 20 in liver they have been stable for over 4...

https://connect.mayoclinic.org/comment/303700/

Discussion: NETs, Toilet Paper, a rant and a little humor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2020

No on bland embolization, did not try lanretide, been on octreotide for 1 yr. had 4...

https://connect.mayoclinic.org/comment/1037570/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2024

I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is...

https://connect.mayoclinic.org/comment/1017449/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2024

This is a great news! Looks like Lanreotide is keeping the growth in check! I just...

https://connect.mayoclinic.org/comment/937359/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

45 year old male(husband)$ diagnosed with Pcan. Stage IV, metastatic to lungs and liver. Starting chemo...

https://connect.mayoclinic.org/comment/1314101/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: Archive

Support Group: Pancreatic Cancer

Posted: May 27, 2025

I wish to join a group with NET Pancreas with multiple Secondaries in Liver, and on...

https://connect.mayoclinic.org/comment/1294836/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2025

Links, Sounds like you have what I have. Mine started in my Pancreas and is in...

https://connect.mayoclinic.org/comment/807256/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

I had one in my colon 12 yrs and surgery ago now in the breast surgery...

https://connect.mayoclinic.org/comment/945075/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2023

Family member recent diagnosis of NETS in ileum, lymph node, and liver. Awaiting removal surgery. First...

https://connect.mayoclinic.org/comment/914810/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 17, 2023

I have neuroendocrine cancer that had metastasized to my liver when diagnosed. I have had this...

https://connect.mayoclinic.org/comment/847070/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

I too have a lot of itching and as weird as it sounds my ears itch...

https://connect.mayoclinic.org/comment/1386144/

Discussion: Why do almost none of the sites online mention severe itching?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2025

I tolerated CAPTEM very well for 5 months and only went off it when there was...

https://connect.mayoclinic.org/comment/1358618/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2025

@ahtaylor My wife’s primary tumor was a mass on the pancreas tail. Our initial findings of...

https://connect.mayoclinic.org/comment/828363/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

My wife has similar mass on her pancreas, we are 9 cycles into chemotherapy (pill version)...

https://connect.mayoclinic.org/comment/802019/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

I was diagnosed accidentally in November last year with stage 4 NET's after having a CT...

https://connect.mayoclinic.org/comment/1479087/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 3:43pm

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