Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comments (1,498)

I have been on Lanreotide for 14 months after pNET with liver metastases. Right after surgery...

https://connect.mayoclinic.org/comment/1070331/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 18 12:57pm

I’m so happy to announce I had a good report on yesterday, November 7 my cat...

https://connect.mayoclinic.org/comment/770639/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2022

I have liver cancer my doctor give a chill pill each time I get MIR (...

https://connect.mayoclinic.org/comment/831688/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 25, 2023

Hi i am 55 male. I had colonoscopy 10/1/2021 and was told polyps were benign and...

https://connect.mayoclinic.org/comment/932623/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

My husband had to have an open surgery because his 3mm tumor was deep in his...

https://connect.mayoclinic.org/comment/1003834/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 9:50pm

Thanks for your update. I’ll have a 3rd injection of Lanreotide next week and have a...

https://connect.mayoclinic.org/comment/937328/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

I’ve had 3 surgeries 2004,2018and then had to repair a bile leak in 2020 from surgery...

https://connect.mayoclinic.org/comment/833909/

Discussion: Anyone have surgery for metastatic PNET done in stages?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

What I do know is that when I had my liver resection 4 years ago they...

https://connect.mayoclinic.org/comment/994210/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 8:12am

Post chemo I had terrible night sweats. Sometimes I changed clothes 5x in the night. They...

https://connect.mayoclinic.org/comment/993685/

Discussion: Anyone have bouts of severe sweats accompanied by muscle weakness

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 9:25am

hi i had a bowel section to remove net tumours and also lymph nodes my cga...

https://connect.mayoclinic.org/comment/1064555/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9 1:05am

I was diagnosed with stage 4 NET’s December 2022, started in small intestines and metastasized to...

https://connect.mayoclinic.org/comment/901156/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

@helloitsme , Hi! I have pancreaticNET with liver metastases, I am on Lanreotide after surgery for...

https://connect.mayoclinic.org/comment/938587/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

Update- surgery on Feb.1st went well. My tumor was humongous - 1.8 kg! Succsessfully removed with...

https://connect.mayoclinic.org/comment/813585/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

I am also like you. I am new to this, but my diagnosis is worse in...

https://connect.mayoclinic.org/comment/776777/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

3 weeks ago I had a MRI and it found a tumour on the tail of...

https://connect.mayoclinic.org/comment/692355/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

I have a well differentiated metastatic liver tumor removed two years ago. I was getting lanreotide...

https://connect.mayoclinic.org/comment/932576/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

I think we are all given a variety of answers depending on? (not sure what), but...

https://connect.mayoclinic.org/comment/952689/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Welcome, @clintwlively. I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well -...

https://connect.mayoclinic.org/comment/981815/

Discussion: Stage four high-grade neuroendocrine carcinoma

Support Group: Lung Cancer

Posted: Dec 16, 2023

I also have metastatic liver both sides Also now in my spine L1 and T10 and...

https://connect.mayoclinic.org/comment/978450/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2023

Me wife had a similar diagnosis. We did the CAP/TEM, surgery of removal of tail of...

https://connect.mayoclinic.org/comment/1105048/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13 2:12pm

Digestive Health

12627

4 minutes ago

Breast Cancer

5513

25 minutes ago

Cancer

6931

38 minutes ago

Cancer: Managing Symptoms

3701

2 hours ago

Adolescent & Young Adult (AYA) Cancer

537

3 hours ago