Neuroendocrine Tumors (NETs): Discussions | Page 30

Hi @ce1b I take Octreotide (similar to lanreotide) injections every 4 weeks for my lung NETs....

https://connect.mayoclinic.org/comment/896824/

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

Hello, my Mom is currently on a clinical trial involving a cancer peptide vaccine and nivo...

https://connect.mayoclinic.org/comment/873518/

Discussion: Immunotherapy (Ipilimumab & Nivolumab) for NETs: Any experiences?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

My suggestions are very similar to the other comments. One thing I did to help was...

https://connect.mayoclinic.org/comment/990161/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2, 2024

What I did was to do a deep dive into the process. First I set my...

https://connect.mayoclinic.org/comment/1000033/

Discussion: Possible NET: Waiting for the endo appointment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2024

Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...

https://connect.mayoclinic.org/comment/844936/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

I, too, have high grade (2/3) metastatic NETs—liver, pancreas, lungs, bone, adrenal gland, parotid gland. I...

https://connect.mayoclinic.org/comment/811356/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

Thank You Colleen, It was also a zoom meeting, so that didn't help......we live 4 and...

https://connect.mayoclinic.org/comment/671245/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2022

So sorry to hear about all your issues. I have DIPNECH also, dx’d after my RML...

https://connect.mayoclinic.org/comment/1222859/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27 8:50am

Hello! Very naive here about where I have been and how concerned I should be. Maybe...

https://connect.mayoclinic.org/comment/758149/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2022

Thank you for your very swift reply and advice it is really confidence boosting to know...

https://connect.mayoclinic.org/comment/264632/

Discussion: Help: What is a cancer symptom or not? Who to see?

Support Group: Cancer: Managing Symptoms

Posted: Jun 5, 2019

I have LiverNET and receive a CT and PET scan every 90 days. Here is some...

https://connect.mayoclinic.org/comment/1218736/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 8:27am

@monroeed- Good morning and welcome to Mayo Clinic Connect. It sounds like your boyfriend is doing...

https://connect.mayoclinic.org/comment/284790/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2019

My NETs was found during an episode of jaundice, where a bile duct was blocked by...

https://connect.mayoclinic.org/comment/755807/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

I'm not sure if this is where I should pose my question, but will give it...

https://connect.mayoclinic.org/comment/1277514/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9 3:29am

Maureen, good topic! I have been fortunate that I don't have to take a lot of...

https://connect.mayoclinic.org/comment/196545/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 17, 2018

My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue,...

https://connect.mayoclinic.org/comment/1025991/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

Wow--thanks for asking! On a practical level, radiation will be done at my local regional cancer...

https://connect.mayoclinic.org/comment/819982/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Hi, I was in middle of this and my msg just disappeared..lol but anyway, no my...

https://connect.mayoclinic.org/comment/1296038/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 8:08pm

The transplant was not done at Mayo, at Froedtert Hospital in Milwaukee, WI. The recovery has...

https://connect.mayoclinic.org/comment/1366630/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8 5:32pm

I have carcinoid tumors in my lungs. One began to grow, so my GP referred me...

https://connect.mayoclinic.org/comment/1382720/

Discussion: Lymph nodes removed during surgery removing tumors in the liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

Neuroendocrine Tumors (NETs) Support Group