Neuroendocrine Tumors (NETs) Support Group

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Comments (271)

I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is...

https://connect.mayoclinic.org/comment/1017449/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2024

I was diagnosed in January that I had a NET. I had CT Scan and PET...

https://connect.mayoclinic.org/comment/1261431/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 6:59pm

I had colon cancer when I was 38 and they did a complete procto collectomy. The...

https://connect.mayoclinic.org/comment/1036092/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2024

@zalda, I'd like to add my welcome. I'm glad that fellow NETs members like @mimisayhi and...

https://connect.mayoclinic.org/comment/1026156/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

Low fibre diet was advised due to my small intestine net causing a possible bowel obstruction....

https://connect.mayoclinic.org/comment/1050410/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

They aren't bad for me at all! They tell you to drink lots of fluids after...

https://connect.mayoclinic.org/comment/897671/

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2023

My surgery at Mayo in Jax is the 1st week in Nov where they will remove...

https://connect.mayoclinic.org/comment/764336/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

In 2007, my doctor discovered the cause of my excruciating abdominal pain, a tumor that had...

https://connect.mayoclinic.org/comment/901146/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Hello @mikhailtsapenko and welcome to NETs support group on Mayo Connect. I am sorry to hear...

https://connect.mayoclinic.org/comment/1193929/

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Hello Teresa, I had a CT scan in the hospital not a PET scan. The scan...

https://connect.mayoclinic.org/comment/940494/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

On a Thursday a MRI on my prostrate showed suspicious cancer in the small intestine my...

https://connect.mayoclinic.org/comment/750473/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

Hi, I was recently diagnosed with, carcinoid syndrome, the tumors (NET) started in my small intestine...

https://connect.mayoclinic.org/comment/815553/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

Here is an example as to why a NET specialist is necessary. My husband had an...

https://connect.mayoclinic.org/comment/917235/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

HI, I'm new to this site. In 2016 I had a bowell blockage that turned out...

https://connect.mayoclinic.org/comment/748393/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

My first tumor was in the small intestine (2014) and successfully removed. The second tumor was...

https://connect.mayoclinic.org/comment/802787/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

I had surgery five years ago for nets in my small intestine which had spread into...

https://connect.mayoclinic.org/comment/217318/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

Hi Kristy. I’ve only had mild flushing that lasts less than an hour. I haven’t taken...

https://connect.mayoclinic.org/comment/766985/

Discussion: My first sudden facial flush since NETs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

@stevestenberg31 he did last week! Unfortunately not enough uptake of the tracer so PRRT is not...

https://connect.mayoclinic.org/comment/824943/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

I was dx in may with net in small intestine tumor was removed but pep scan...

https://connect.mayoclinic.org/comment/758557/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2022

@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera...

https://connect.mayoclinic.org/comment/1284269/

Discussion: NET in the jejunum spread to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

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