Neuroendocrine Tumors (NETs): Discussions | Page 3

I had a small bowel resection in 2007 because my carcinoid tumor had grown around several...

https://connect.mayoclinic.org/comment/874036/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

Good to see you, @cu2. You might find some helpful post in this related discussion: -...

https://connect.mayoclinic.org/comment/1271252/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 6:27pm

Thanks for the feedback firepower. I also have grade 3 Ki67 of 42 and am looking...

https://connect.mayoclinic.org/comment/828496/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

Hello @cu2, I have had two resections of the duodenal bulb. The carcinoids were small. Do...

https://connect.mayoclinic.org/comment/1271143/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 3:49pm

I was diagnosed with NET’s starting in small bowel and metastasized to liver, I’ve been on...

https://connect.mayoclinic.org/comment/1283550/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16 6:11pm

I had surgery at Mayo Clinic in Rochester, MN in 2016. 3 feet small bowel, 12...

https://connect.mayoclinic.org/comment/102048/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2019

had portion of small bowel removed here in north carolina but , NET are still in...

https://connect.mayoclinic.org/comment/176725/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2019

Yes i had small bowel surgery 10 days back.. currently m recovering for chemo..i lost 12...

https://connect.mayoclinic.org/comment/786385/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

@fraaseo I live in Far North Qld Australia. I found out in 2021 I had net...

https://connect.mayoclinic.org/comment/1402161/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26 4:01pm

Good day, Yes, I think this is my case. Mine is 9mm and mean. I am...

https://connect.mayoclinic.org/comment/1350762/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18 7:03am

Thank you all for your input of PRRT experiences. 10/1 I receive 3rd infusion of Lutathera...

https://connect.mayoclinic.org/comment/1143557/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Hi Teresa, I had been having MRI scans every 4-6 months after removal of the primary...

https://connect.mayoclinic.org/comment/801786/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

My husband was diagnosed with GITract small bowel Neuroendocrine tumor Stage 4 Grade 2 well-differentiated KY...

https://connect.mayoclinic.org/comment/1120029/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a...

https://connect.mayoclinic.org/comment/1218822/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 9:33am

Hello @fraaseo and welcome to the NETs support group on Mayo Connect. On Connect, there are...

https://connect.mayoclinic.org/comment/1269770/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 6:22am

Thank you for your post. I have small bowel primary NETs with liver met only diagnosed...

https://connect.mayoclinic.org/comment/786233/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

@vinnie694 & @Ins83: DIDDO Ins83! I think Vinnie and my NET small bowel cancer is very...

https://connect.mayoclinic.org/comment/1414228/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

Hi, Hopeful--yes, you have that right, my tumors were never caught by colonoscopy, upper endoscopy, CT...

https://connect.mayoclinic.org/comment/127208/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...

https://connect.mayoclinic.org/comment/1284362/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18 12:27am

@Hollywood81: I am anxiously following your case because I am now receiving PRRT Lutathera treatment for...

https://connect.mayoclinic.org/comment/1151563/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2024

Neuroendocrine Tumors (NETs) Support Group