Neuroendocrine Tumors (NETs): Discussions | Page 3

Thank you for your post. I have small bowel primary NETs with liver met only diagnosed...

https://connect.mayoclinic.org/comment/786233/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Hello @fraaseo and welcome to the NETs support group on Mayo Connect. On Connect, there are...

https://connect.mayoclinic.org/comment/1269770/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 6:22am

Hi, Hopeful--yes, you have that right, my tumors were never caught by colonoscopy, upper endoscopy, CT...

https://connect.mayoclinic.org/comment/127208/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

Wow thats a lot to deal with at once. I've been dealing with it since 2020...

https://connect.mayoclinic.org/comment/1289339/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 6:09am

I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and...

https://connect.mayoclinic.org/comment/1236191/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 3:52pm

@Hollywood81: I am anxiously following your case because I am now receiving PRRT Lutathera treatment for...

https://connect.mayoclinic.org/comment/1151563/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2024

I should mention that my primary (origin) started in the small bowel and metastasized into my...

https://connect.mayoclinic.org/comment/1227757/

Discussion: Histotripsy near St. Louis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 1:21pm

Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small...

https://connect.mayoclinic.org/comment/1317375/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31 2:20pm

Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct...

https://connect.mayoclinic.org/comment/1104370/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2024

We sound very similar. Small bowel primary with mets to liver. Started octreotide after bowel resection....

https://connect.mayoclinic.org/comment/1218810/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 9:23am

"What would you do?" you asked. I"m pretty much in the same situation. I still have...

https://connect.mayoclinic.org/comment/1227644/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 11:13am

Hello, my husband (55 years old) was diagnosed with grade 1 stage 4 (primary in small...

https://connect.mayoclinic.org/comment/1295494/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 7:32am

I had a liver tumor biopsy in October even though the doctors and I all knew...

https://connect.mayoclinic.org/comment/795174/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Hello, Am Ayesha from Massachusetts, just diagnosed with small bowel carcinoma, 2 weeks ago. I have...

https://connect.mayoclinic.org/comment/765099/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2022

I don’t want to scare you, but it was painful 5 hour surgery. I was hospitalized...

https://connect.mayoclinic.org/comment/1309905/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21 8:57pm

Why did you have a CT/Pet in the first place? Did or do you have symptoms?...

https://connect.mayoclinic.org/comment/1264349/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 4:49pm

You have been through a lot the past 6 weeks. I too had a NET 1.5...

https://connect.mayoclinic.org/comment/1221095/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 8:04am

Hi . I have small bowel net and did start on creon due to pale stools...

https://connect.mayoclinic.org/comment/1050394/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

UPDATE... NET specialist says I'm lucky. And rare as my SBNETs does not seem to have...

https://connect.mayoclinic.org/comment/1224979/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29 7:08pm

hi I am from Far North Queensland Australia 3 years ago I found out I had...

https://connect.mayoclinic.org/comment/1312071/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 4:15pm

Neuroendocrine Tumors (NETs) Support Group