Neuroendocrine Tumors (NETs) Support Group

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Comments (184)

full of gas i have net of small bowel tumor was removed 5/22, i have 3...

https://connect.mayoclinic.org/comment/789668/

Discussion: What helps with gas and pain after surgery?

Support Group: Cancer: Managing Symptoms

Posted: Dec 28, 2022

Thank you. I had a small bowel resection 8 days ago. I am doing ok. I...

https://connect.mayoclinic.org/comment/1205816/

Discussion: Is there anything I can do for the bloating?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2025

I tip my hat to you! The fact that you've had that much surgery and seem...

https://connect.mayoclinic.org/comment/1272388/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

You've been diagnosed with Neuroendocrine cancer? Symptoms? How was this discovered? Maybe you are needing a...

https://connect.mayoclinic.org/comment/1370852/

Discussion: Surgery on Small Intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14, 2025

Thanks for the feedback firepower. I also have grade 3 Ki67 of 42 and am looking...

https://connect.mayoclinic.org/comment/828496/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

My primary NET tumor was surgically removed from the mesentery along with 15 lymph nodes (9...

https://connect.mayoclinic.org/comment/1480992/

Discussion: Anyone had radiation for carcoinoid in Mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 10:39pm

Good to see you, @cu2. You might find some helpful post in this related discussion: -...

https://connect.mayoclinic.org/comment/1271252/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2025

Hello @cu2, I have had two resections of the duodenal bulb. The carcinoids were small. Do...

https://connect.mayoclinic.org/comment/1271143/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2025

I was diagnosed with NET’s starting in small bowel and metastasized to liver, I’ve been on...

https://connect.mayoclinic.org/comment/1283550/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2025

I had surgery at Mayo Clinic in Rochester, MN in 2016. 3 feet small bowel, 12...

https://connect.mayoclinic.org/comment/102048/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2019

had portion of small bowel removed here in north carolina but , NET are still in...

https://connect.mayoclinic.org/comment/176725/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2019

Since 2018 I have small bowel NET/carcinoid, met to the liver. Surgery removed the primary tumor...

https://connect.mayoclinic.org/comment/1537401/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28 3:04pm

Yes i had small bowel surgery 10 days back.. currently m recovering for chemo..i lost 12...

https://connect.mayoclinic.org/comment/786385/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Thank you all for your input of PRRT experiences. 10/1 I receive 3rd infusion of Lutathera...

https://connect.mayoclinic.org/comment/1143557/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

My husband was diagnosed with GITract small bowel Neuroendocrine tumor Stage 4 Grade 2 well-differentiated KY...

https://connect.mayoclinic.org/comment/1120029/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

Hi Teresa, I had been having MRI scans every 4-6 months after removal of the primary...

https://connect.mayoclinic.org/comment/801786/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

Thank you for your post. I have small bowel primary NETs with liver met only diagnosed...

https://connect.mayoclinic.org/comment/786233/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Hello @fraaseo and welcome to the NETs support group on Mayo Connect. On Connect, there are...

https://connect.mayoclinic.org/comment/1269770/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2025

We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a...

https://connect.mayoclinic.org/comment/1218822/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2025

Hello @jillyg I'm glad that you found this discussion group. I am sorry to hear of...

https://connect.mayoclinic.org/comment/1403281/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Sep 28, 2025

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