Neuroendocrine Tumors (NETs) Support Group

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Comments (113)

@sharris, your story and experience is very welcome, especially since Merkel cell cancer is so rare....

https://connect.mayoclinic.org/comment/961095/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Nov 8, 2023

Hello @maryluph1953 I see that you are in the process of treatment for Merkel Cell Carcinoma...

https://connect.mayoclinic.org/comment/1155843/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 12, 2024

Good Morning on Tax Day 2026, I’m here at the Mayo in Jacksonville today for a...

https://connect.mayoclinic.org/comment/1550874/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: 2 days ago

@ablanton123, welcome. I'm tagging several members who have had immunotherapy as a treatment for merkel cell...

https://connect.mayoclinic.org/comment/1070418/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 18, 2024

Hello @mktz49 and welcome to Mayo Connect. I see that you are interested in Merkel cell...

https://connect.mayoclinic.org/comment/1063243/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6, 2024

I have Merkel cell carcinoma and today had my 8th immunotherapy infusion using OPDIVO. The treatments...

https://connect.mayoclinic.org/comment/1006765/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 30, 2024

Thank you so very much rogermcintire, I have been diagnosed with Merkel Cell Carcinoma January 2024,...

https://connect.mayoclinic.org/comment/1038685/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2024

Oh that sounds miserable and painful. I'm tagging other merkel cell members like @rogermcintire @mkhighpoint @lynn99...

https://connect.mayoclinic.org/comment/1214574/

Discussion: Merkel cell cancer treatments when the wound bust open

Support Group: Melanoma & Skin Cancer

Posted: Jan 16, 2025

How was your Merkel cell carcinoma staged? Here's an interesting article you may want to share...

https://connect.mayoclinic.org/comment/1290466/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Apr 26, 2025

Hi Carol, having a weak immune system and now a sore that won't heal understandably makes...

https://connect.mayoclinic.org/comment/783353/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

Yes I will find out my chemo plan on Thursday. Feeling good and off steroids. Just...

https://connect.mayoclinic.org/comment/1155847/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 12, 2024

I’m having some difficulty figuring out how all this works but I would like to interact...

https://connect.mayoclinic.org/comment/950890/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 20, 2023

Hello Mary, I'm Roger, 82 year old male, married 63 years and diagnosed with Merkel in...

https://connect.mayoclinic.org/comment/1159889/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 20, 2024

Hello MKhighpoint, thank you for your response and sharing your Merkel situation. It sounds like you...

https://connect.mayoclinic.org/comment/1034821/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2024

Hi Roger, you're in the right place to connect with other members living with Merkel cell...

https://connect.mayoclinic.org/comment/956434/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 30, 2023

I took immunotherapy I was diagnosed in June of 23 with Merkel cell carcinoma it was...

https://connect.mayoclinic.org/comment/1172429/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2024

Thanks for asking. Luckily she had no pain from the surgery. Her only complaint was where...

https://connect.mayoclinic.org/comment/1377125/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Aug 23, 2025

Yes, I have recently been diagnosed with Merkel Cell Carcinoma and have not yet received results...

https://connect.mayoclinic.org/comment/1063383/

Discussion: Merkel cancer update

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6, 2024

Thank you so much for responding. I also had esophageal cancer three years ago and it...

https://connect.mayoclinic.org/comment/943901/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 7, 2023

Hello @hunter59 and welcome to Mayo Connect. I appreciate you sharing your journey with Merkel Cell...

https://connect.mayoclinic.org/comment/966659/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Nov 17, 2023

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