Neuroendocrine Tumors (NETs): Discussions | Page 3

Mixed blessing. Lanreotide not doing its job …

https://connect.mayoclinic.org/comment/1328756/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 9:51pm

Thanks for your update. I’ll have a 3rd injection of Lanreotide next week and have a...

https://connect.mayoclinic.org/comment/937328/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

I’ve looked at a couple of major cancer centers to understand that and they do recommend...

https://connect.mayoclinic.org/comment/879423/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

Also getting lanreotide shot once a month.

https://connect.mayoclinic.org/comment/1398734/

Discussion: Anyone taking Cabometyx?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22 10:22am

I've had 17 lanreotide injections. one every 3 weeks. i still have all my hair. i...

https://connect.mayoclinic.org/comment/1011155/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2024

Did you have changes in your blood sugar levels with the lanreotide?

https://connect.mayoclinic.org/comment/1207545/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 10:36am

I wouldn't expect significant change other than stability. Lanreotide doesn't usually shrink tumors but it can...

https://connect.mayoclinic.org/comment/1324206/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 10:07am

I am taking the lanreotide injection every month

https://connect.mayoclinic.org/comment/1174217/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2024

You may be experiencing side effects from the lanreotide. Or other medication interaction with laneeotide or...

https://connect.mayoclinic.org/comment/1073230/

Discussion: Lung Nets and pain in arm pit

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2024

@panorman3 Your doctor will likely keep an eye on the blood sugars through regular bloodwork. That...

https://connect.mayoclinic.org/comment/1439930/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16 8:26am

Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide...

https://connect.mayoclinic.org/comment/729591/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

@sophiarose - are you on different treatment now that you stopped Lanreotide? And what?

https://connect.mayoclinic.org/comment/867881/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

I get a shot every 28 days of lanreotide is this the same

https://connect.mayoclinic.org/comment/718868/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2022

Do you notice any difference between the long acting stuff vs. Lanreotide?

https://connect.mayoclinic.org/comment/819994/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

I have completed my 4th shot . I stand corrected the shots are octeotride, a cousin...

https://connect.mayoclinic.org/comment/1453510/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5 10:20am

Welcome. Have you posted before? That's a lot to unpack. You have a rare type of...

https://connect.mayoclinic.org/comment/1406878/

Discussion: Several inoperable paragangliomas, on lanreotide, now big mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2 2:22pm

Feeling a bit discouraged as had hoped for better lanreotide effects. However: onward!!

https://connect.mayoclinic.org/comment/1328604/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 5:32pm

I have had many PET scans but they have not ever requested my every three week...

https://connect.mayoclinic.org/comment/1425181/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28 10:19am

I have continually gotten my lanreotide and have MRIs with contrast on a regular basis for...

https://connect.mayoclinic.org/comment/1169863/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2024

I go for my third Lanreotide shot soon, .. is the CAPTEM working?

https://connect.mayoclinic.org/comment/836321/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

Neuroendocrine Tumors (NETs) Support Group