Neuroendocrine Tumors (NETs): Discussions | Page 3

Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...

https://connect.mayoclinic.org/comment/1108887/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2024

@gram26 Hello Jane and welcome to the NETs support group on Mayo Connect. I so appreciated...

https://connect.mayoclinic.org/comment/881787/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

@mlbschuler I am so excited to hear you are seeing Robert Ramirez! He seems the most...

https://connect.mayoclinic.org/comment/1012065/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

Slow growing is good! How large is the largest tumor? It makes me wonder if you...

https://connect.mayoclinic.org/comment/1081836/

Discussion: Multiple bilateral neuroendocrine lung tumors grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2024

Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....

https://connect.mayoclinic.org/comment/1220927/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24 10:48pm

If anyone out there can recommend a Dr. in the Florida area that is very familiar...

https://connect.mayoclinic.org/comment/965239/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2023

I had my middle right lobe and a part of top lobe removed in 2018, pathology...

https://connect.mayoclinic.org/comment/1287231/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 1:54am

Had carcinoid tumor removed from lung last year, stage 1 cancer, lymph nodes good. Prior to...

https://connect.mayoclinic.org/comment/844635/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

Hi @breck You’ve been through a lot. Sorry to hear they did not get it all....

https://connect.mayoclinic.org/comment/1169807/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...

https://connect.mayoclinic.org/comment/1208016/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 5:26am

@grec, it is scary having a rare disorder, especially when active surveillance is the presecribed treatment....

https://connect.mayoclinic.org/comment/1010744/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2024

I too appreciate being able to read of people's experiences, I live in Australia and I...

https://connect.mayoclinic.org/comment/1223283/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27 3:39pm

I do actually go to Mayo-pulmonologist. He said Dipnech is a label that is hard to...

https://connect.mayoclinic.org/comment/846032/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon...

https://connect.mayoclinic.org/comment/1142739/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2024

Hi @bcraft. I'm new to this site too and what brought me here was a search...

https://connect.mayoclinic.org/comment/838450/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2023

Rona I appreciate your reply. I will be getting my baseline scans and bloodwork in mid...

https://connect.mayoclinic.org/comment/1275395/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 9:05am

Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...

https://connect.mayoclinic.org/comment/844936/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...

https://connect.mayoclinic.org/comment/1208685/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 10:59pm

I have DIPNECH, also had my right middle lobe removed in October 2023. At this point,...

https://connect.mayoclinic.org/comment/1244351/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24 8:29am

https://connect.mayoclinic.org/comment/660238/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2021

Neuroendocrine Tumors (NETs) Support Group