Neuroendocrine Tumors (NETs): Discussions | Page 29

Hi GAP, Last May 2022 I had a lung NET removed with the right upper lobe...

https://connect.mayoclinic.org/comment/802258/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

I had one in my colon 12 yrs and surgery ago now in the breast surgery...

https://connect.mayoclinic.org/comment/945075/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2023

I have neuroendocrine cancer that had metastasized to my liver when diagnosed. I have had this...

https://connect.mayoclinic.org/comment/847070/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Family member recent diagnosis of NETS in ileum, lymph node, and liver. Awaiting removal surgery. First...

https://connect.mayoclinic.org/comment/914810/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 17, 2023

I wish to join a group with NET Pancreas with multiple Secondaries in Liver, and on...

https://connect.mayoclinic.org/comment/1294836/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2 8:59am

45 year old male(husband)$ diagnosed with Pcan. Stage IV, metastatic to lungs and liver. Starting chemo...

https://connect.mayoclinic.org/comment/1314101/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 27 12:53pm

I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is...

https://connect.mayoclinic.org/comment/1017449/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2024

No on bland embolization, did not try lanretide, been on octreotide for 1 yr. had 4...

https://connect.mayoclinic.org/comment/1037570/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2024

This is a great news! Looks like Lanreotide is keeping the growth in check! I just...

https://connect.mayoclinic.org/comment/937359/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Hello, I just finished my third round of Lutathera treatment. Each treatment takes 5-6 hrs, no...

https://connect.mayoclinic.org/comment/942546/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

Hello @tomatlanta, I appreciate you sharing about your wife's journey with a NETs diagnosis. Everyone's journey...

https://connect.mayoclinic.org/comment/877795/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

I did the watch and wait for a small (1cm) PNET on the head of my...

https://connect.mayoclinic.org/comment/815227/

Discussion: Cough ! What could it be?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21, 2023

Last April he had a ct scan for stomach pain. Was then diagnosed with stage 4...

https://connect.mayoclinic.org/comment/1219890/

Discussion: Liver masses found on CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 3:08pm

In May of 2024 I had 5 tumors worked on (in my liver) (I was told...

https://connect.mayoclinic.org/comment/1195158/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2024

I have metastatic insulinoma. Mets to the liver. PRRT has not been part of my treatment...

https://connect.mayoclinic.org/comment/1087158/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2024

@harley4650 Sorry, the links somehow combined so I'll try again: West coast hospitals with histotripsy https://blog.providence.org/blog/revolutionary-procedure-brings-new-hope-to-liver-cancer-patients-at-providence-providence-swedish...

https://connect.mayoclinic.org/comment/1047150/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2024

Hi @lindabees , Thanks for your encouraging story. What did the second doctor do to erase...

https://connect.mayoclinic.org/comment/1003894/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My...

https://connect.mayoclinic.org/comment/1204588/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 12:42pm

This is the protocol. Do the chemo meds (captem) so it shrinks the tumor then to...

https://connect.mayoclinic.org/comment/1321086/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5 6:30pm

I was on CAPTEM for 13 cycles. My pnet and largest liver lesion shrunk in half....

https://connect.mayoclinic.org/comment/1358810/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 8:02pm

Neuroendocrine Tumors (NETs) Support Group