Neuroendocrine Tumors (NETs) Support Group

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I had a liver embolization in June and no itches all of July. However, most of...

https://connect.mayoclinic.org/comment/1387996/

Discussion: Why do almost none of the sites online mention severe itching?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2025

Thank you Colleen. I was told I will have a distal pancreatic surgery and that it...

https://connect.mayoclinic.org/comment/805137/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

So I am also grade 2 stage 4 ki-67 7% metatasic to both sides of the...

https://connect.mayoclinic.org/comment/978339/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2023

I haven’t had an official diagnosis of Insulinoma but my symptoms definitely look like one (per...

https://connect.mayoclinic.org/comment/1352406/

Discussion: Insulinoma and back pain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2025

What a situation There is a transplant team in New York st Mount Sinai Hospital it...

https://connect.mayoclinic.org/comment/1328862/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Thank you! I had my first CT scan after surgery and 3 Lan injections. No tumour...

https://connect.mayoclinic.org/comment/876264/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

Thank you for sharing. This is very good, helpful information. Im in Oklahoma, and have found...

https://connect.mayoclinic.org/comment/872994/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Jun 5, 2023

I did not tolerate well the milk shakes, probably due to milk, but also cacao is...

https://connect.mayoclinic.org/comment/919089/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2023

https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was...

https://connect.mayoclinic.org/comment/1252413/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2025

I hope you are doing well and have no recurrence of NETs! Do you mind sharing...

https://connect.mayoclinic.org/comment/1239322/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2025

@fae As a fellow Wisconsin Badger, my wife has dealt with the past 9 months, similar...

https://connect.mayoclinic.org/comment/827529/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

I too respect your decision. But I can tell you that my diagnosis was stage IV....

https://connect.mayoclinic.org/comment/942810/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 6, 2023

Always keeping the fight! Glad to hear you have a great experience at Dana Farber. Being...

https://connect.mayoclinic.org/comment/943748/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

@cangre82, a lot of us have done your path, and we tell you our story and...

https://connect.mayoclinic.org/comment/1074865/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2024

I understand how you are feeling, my two youngest were 6 when I was diagnosed with...

https://connect.mayoclinic.org/comment/800359/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Indeed nearly a meter of my small intestine was removed, along with a mass of lymph...

https://connect.mayoclinic.org/comment/1393614/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2025

My husband also has one in the small intestine that metastasized to the liver & spine,...

https://connect.mayoclinic.org/comment/885632/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

I was diagnosed with multiple Net’s in the small bowel, and 16 Net’s on my liver...

https://connect.mayoclinic.org/comment/1023918/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2024

I have had all stool tests, ct liver belly, pancreas and ldct lung which showed 6...

https://connect.mayoclinic.org/comment/823720/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

Are you still on CapTem. I have been in on it for 6 months. Dr. Hopes...

https://connect.mayoclinic.org/comment/1367019/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 9, 2025

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