Neuroendocrine Tumors (NETs): Discussions | Page 28

We got an appointment for second opinion. Two days before we consulted with doctor that was...

https://connect.mayoclinic.org/comment/1160931/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

My condition is similar stage 4 due to it metastasizing to the liver, origin is the...

https://connect.mayoclinic.org/comment/1106025/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

I also take ocreotide injections monthly. I’m usually tired for 2 days after each shot. But...

https://connect.mayoclinic.org/comment/1100384/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2024

His last treatment is in Dec. The scan won't be don't until next year sometime. Possibly...

https://connect.mayoclinic.org/comment/900285/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2023

@sophiarose, were you able to discuss stopping and/or restarting Ocreotide with your oncologist? What did you...

https://connect.mayoclinic.org/comment/836317/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

I have NET metastasis liver cancer I have been told by 3 drs that they don’t...

https://connect.mayoclinic.org/comment/835279/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

I also have Grade 2, KI - 67 of 6.6% Stage 4, metastasized from small intestines...

https://connect.mayoclinic.org/comment/1261758/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 9:25am

Sophiarose Hope your thanksgiving was good. I’ve been on Ocreotide for 18 months, it does control...

https://connect.mayoclinic.org/comment/1181640/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Reaching to to anyone taking Ocreotide In October I finished my 4th and last PRRT treatment...

https://connect.mayoclinic.org/comment/1181602/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

I’ve been on Ocreotide for18 months now and have not had that experience with the injections..

https://connect.mayoclinic.org/comment/1206930/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 1:56pm

I have been having the monthly injections of Octreatide. (Sp?) for about a year. It also...

https://connect.mayoclinic.org/comment/1303282/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 11:16am

I had two lantreotide shots. They controlled my hot flashes and made me feel human but...

https://connect.mayoclinic.org/comment/1347584/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13 8:09pm

I have seen octriotide lessons symptoms and can reduce tumor growth. Mom wll be getting another...

https://connect.mayoclinic.org/comment/1162009/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2024

Thank you for your quick response I took 3 infusions of Lanreotide in 2022 had to...

https://connect.mayoclinic.org/comment/1128751/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2024

The tumors are grade 2 Stage 4 I had bland embolization No radiation I am now...

https://connect.mayoclinic.org/comment/978230/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2023

I was diagnosed with DIPNECH at National Jewish Health (NJH) 3/23. I've been coughing and being...

https://connect.mayoclinic.org/comment/906680/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 2, 2023

My hubs was diagnosed in 2019 with an intestinal blockage. Surgery revealed he had the NET...

https://connect.mayoclinic.org/comment/899657/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

Ok. My hubs is on octrotide (sandostatin) injections. Maybe that's why it's not an issue.

https://connect.mayoclinic.org/comment/879432/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

I went on to Ocreotide The first 3 injections I had side effects that weren’t so...

https://connect.mayoclinic.org/comment/868253/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

I am so sorry for you and your husband I am on 10mg of Ocreotide and...

https://connect.mayoclinic.org/comment/832950/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2023

Neuroendocrine Tumors (NETs) Support Group