Neuroendocrine Tumors (NETs) Support Group | Page 28

https://connect.mayoclinic.org/comment/858717/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

I have been fasting now for a month. Not eating till 12pm each day. I have...

https://connect.mayoclinic.org/comment/1031174/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2024

Hello @wolf359 and welcome to the NETs support group on Mayo Connect. I so appreciate you...

https://connect.mayoclinic.org/comment/930465/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2023

I live in Canada: aside from having a Whipple / liver debulking in October 2023 and...

https://connect.mayoclinic.org/comment/1260313/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2025

I have been on lanreotide acetate spring Hormone shot therapy treatment for my Pancreas neuroendocrine tumor...

https://connect.mayoclinic.org/comment/1081460/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2024

Yes, they saw the liver metastases on day 1. In fact they ruled out surgery at...

https://connect.mayoclinic.org/comment/1352512/

Discussion: Insulinoma and back pain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2025

Yes! Sorry you're so sick! Are you even sure it's from the NETs and not a...

https://connect.mayoclinic.org/comment/888985/

Discussion: Should I go to the ER? I’m sicker than I’ve ever been.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2, 2023

I was diagnosed with NETs last year. My case is a bit unusual since it seems...

https://connect.mayoclinic.org/comment/804124/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Greetings....I am still standing and living a normal life at 85 with my disease in the...

https://connect.mayoclinic.org/comment/801669/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

I've had 9 months of Lanreotide treatment every 28 days. It started in my small intestine...

https://connect.mayoclinic.org/comment/1427974/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

Why did you have a CT/Pet in the first place? Did or do you have symptoms?...

https://connect.mayoclinic.org/comment/1264349/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2025

I have been on Lanreotide 120mg since April 2023. First few injections were with bad reaction...

https://connect.mayoclinic.org/comment/1211203/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2025

@jlsgt Thank you for your thoughtful response, I really appreciate you sharing your experience. I’ve had...

https://connect.mayoclinic.org/comment/1495998/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1 11:18pm

@tomrennie The PRRT was not bad at all. My skin is sensitive and I have to...

https://connect.mayoclinic.org/comment/1508798/

Discussion: Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18 10:53am

My oncologist has prescribed lanreotide but I haven’t started as my surgeon suggested I wait for...

https://connect.mayoclinic.org/comment/1033760/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2024

@anonymous524849 I have but I feel still worth it. I eat dairy before bed day of...

https://connect.mayoclinic.org/comment/1426873/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

Diagnosed in 2019 I’m now 65 have a pancreatic net that metastasis in the liver. Tumor...

https://connect.mayoclinic.org/comment/1110111/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

I do lanreotide injections for about 2 years now, but I think they are very similar--after...

https://connect.mayoclinic.org/comment/966948/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Hello. Diagnosed almost 2 years ago. Had one year of uncontrollable diarrhea. Diagnosed with IBS at...

https://connect.mayoclinic.org/comment/952145/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

Hi Nana120 I can relate to you. I am having my 3rd Lanreotide this week. I...

https://connect.mayoclinic.org/comment/940604/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023