Neuroendocrine Tumors (NETs): Discussions | Page 26

Hi My husband has a similar situation. He was diagnosed last March with a grade 1,...

https://connect.mayoclinic.org/comment/1216829/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 5:32pm

I’ve been on Ocreotide for over 2 years, approx 16 tumors on my Liver. There has...

https://connect.mayoclinic.org/comment/1274535/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 4:55am

I am also one of the lucky ones with carcinoid syndrome.. started with Lanreotide which didn’t...

https://connect.mayoclinic.org/comment/1123918/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2024

I should mind my own business However! I have had 4 different options if there is...

https://connect.mayoclinic.org/comment/1028520/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2024

Yes the bloating in my case was from lanreotide and Ocreotide My stomach is perfectly flat...

https://connect.mayoclinic.org/comment/862879/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2023

Thank you. Yes my last 4th treatment was on the 14th. Several of my labs came...

https://connect.mayoclinic.org/comment/257043/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 15, 2020

@hopeful33250 Wow - what a great article and information. No, I didn't know about octreotride. I...

https://connect.mayoclinic.org/comment/297055/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2020

Teresa, Carcinoid has been one of the many things I have thought about. I have had...

https://connect.mayoclinic.org/comment/186235/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 24, 2018

Been taking Ocreotide for about 18 months 2 shots every 28 days.. stage 4 metastasized to...

https://connect.mayoclinic.org/comment/1196525/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

I also have Grade 2, KI - 67 of 6.6% Stage 4, metastasized from small intestines...

https://connect.mayoclinic.org/comment/1261758/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 9:25am

Sophiarose Hope your thanksgiving was good. I’ve been on Ocreotide for 18 months, it does control...

https://connect.mayoclinic.org/comment/1181640/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Reaching to to anyone taking Ocreotide In October I finished my 4th and last PRRT treatment...

https://connect.mayoclinic.org/comment/1181602/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

I’ve been on Ocreotide for18 months now and have not had that experience with the injections..

https://connect.mayoclinic.org/comment/1206930/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 1:56pm

I have been having the monthly injections of Octreatide. (Sp?) for about a year. It also...

https://connect.mayoclinic.org/comment/1303282/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 11:16am

We got an appointment for second opinion. Two days before we consulted with doctor that was...

https://connect.mayoclinic.org/comment/1160931/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

My condition is similar stage 4 due to it metastasizing to the liver, origin is the...

https://connect.mayoclinic.org/comment/1106025/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

I also take ocreotide injections monthly. I’m usually tired for 2 days after each shot. But...

https://connect.mayoclinic.org/comment/1100384/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2024

His last treatment is in Dec. The scan won't be don't until next year sometime. Possibly...

https://connect.mayoclinic.org/comment/900285/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2023

@sophiarose, were you able to discuss stopping and/or restarting Ocreotide with your oncologist? What did you...

https://connect.mayoclinic.org/comment/836317/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

I have NET metastasis liver cancer I have been told by 3 drs that they don’t...

https://connect.mayoclinic.org/comment/835279/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Neuroendocrine Tumors (NETs) Support Group