Neuroendocrine Tumors (NETs): Discussions | Page 26

Take a deep breath. There are lots of treatments for this cancer. I also have a...

https://connect.mayoclinic.org/comment/1219584/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 9:27am

Definitely identify with the private moments of emotions. My wife is a natural born worrier.. She...

https://connect.mayoclinic.org/comment/1192097/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2024

My treatments were different I had 4 and they were 8 weeks apart Except for after...

https://connect.mayoclinic.org/comment/1312828/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 6:40pm

Thank you My worst side effects are total exhaustion massive headache and diarrhea The more minimal...

https://connect.mayoclinic.org/comment/1313479/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 3:32pm

Are you getting monthly injections? I started with Lanreotide, that didn’t help the flushing, I was...

https://connect.mayoclinic.org/comment/1208804/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11 7:25am

I was diagnosed 2 years ago, with stage 4 ,started in my lower intestines and metastasized...

https://connect.mayoclinic.org/comment/1202170/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2 7:17am

Thanks! @hopeful33250 those articles are helpful! I’m a caregiver. My mom was diagnosed with NETs (Primary...

https://connect.mayoclinic.org/comment/311779/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2020

I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated...

https://connect.mayoclinic.org/comment/1162526/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...

https://connect.mayoclinic.org/comment/1147007/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2024

I was diagnosed with stage 4 advanced NET s primary in the small bowels, and metastasized...

https://connect.mayoclinic.org/comment/1112552/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

My tumors started in the small intestine and metastasized to the liver before I was diagnosed....

https://connect.mayoclinic.org/comment/1072655/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

What I do know is that when I had my liver resection 4 years ago they...

https://connect.mayoclinic.org/comment/994210/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2024

Thank you I did Lanreotide had bad side effects had to stop I was ok on...

https://connect.mayoclinic.org/comment/830413/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Yes, to the point I am surprised I don't glow. :) I have had multiple Pituitary...

https://connect.mayoclinic.org/comment/186233/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 24, 2018

@gaylejean That is an interesting approach, thanks for sharing your doctor's opinion. It might still be...

https://connect.mayoclinic.org/comment/137548/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2017

Hi I’ve been living with carcinoid tumor now since 2011 when I first learned I had...

https://connect.mayoclinic.org/comment/747582/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2022

My tumors are not in my lungs but in response to the flushing, I experienced flushing...

https://connect.mayoclinic.org/comment/1107435/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2024

I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...

https://connect.mayoclinic.org/comment/1035643/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2024

The carcinoid heart disease caused a lot of swelling to the point it was putting pressure...

https://connect.mayoclinic.org/comment/911346/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2023

I was diagnosed type 2 diabetes 2 years ago when I was diagnosed with carcinoid syndrome.....

https://connect.mayoclinic.org/comment/1233965/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10 5:22pm

Neuroendocrine Tumors (NETs) Support Group