Neuroendocrine Tumors (NETs): Discussions | Page 25

61 yr old patient, liver mets after 7 months of whipples. Now under chemo. Not able...

https://connect.mayoclinic.org/comment/1062766/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5 3:25pm

Interesting. I am on my second cancer - fist lung five years ago, now liver. Now...

https://connect.mayoclinic.org/comment/232728/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hello @siluka and welcome to Mayo Connect. Your concern about the CgA levels and the lesions...

https://connect.mayoclinic.org/comment/1064999/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9 3:54pm

and the CT that local reading identified a new liver met, but Mayo review of that...

https://connect.mayoclinic.org/comment/1117858/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4 4:55pm

It is funny. That is the final scan I got for the oncologist to tell me...

https://connect.mayoclinic.org/comment/833905/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

I had abdominal pain for a year . Had CT’S , ultrasounds done , all negative....

https://connect.mayoclinic.org/comment/877887/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

Eating well but have lost around 12 pounds since start of Ocerotide in April. In retrospect...

https://connect.mayoclinic.org/comment/720098/

Discussion: New to NETs: Found lesions on liver during a health check

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22, 2022

I also have stage 4 Neuroendocrine in the body pancreas along with small spots on my...

https://connect.mayoclinic.org/comment/796911/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

I have an unknown primary mine has spread to my liver spine and ribs I have...

https://connect.mayoclinic.org/comment/980862/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

Hi Teresa, Dx was in 2009 when I went to the ER with worse headache I...

https://connect.mayoclinic.org/comment/933446/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Grade 2. My Whipple went well but Mets to the liver in about a year. PRRT...

https://connect.mayoclinic.org/comment/1060558/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1 10:49pm

@Hollywood81: I am anxiously following your case because I am now receiving PRRT Lutathera treatment for...

https://connect.mayoclinic.org/comment/1151563/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4 6:02am

I was on lanreotide now on octreotide and yesterday my MRI showed my tumors are still...

https://connect.mayoclinic.org/comment/741450/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2022

I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...

https://connect.mayoclinic.org/comment/878862/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Hi, I was recently diagnosed with, carcinoid syndrome, the tumors (NET) started in my small intestine...

https://connect.mayoclinic.org/comment/815553/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

@harley4650 So sorry to hear about the progression. What about the newly approved histotripsy procedure for...

https://connect.mayoclinic.org/comment/1047144/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 10:36pm

Here is an example as to why a NET specialist is necessary. My husband had an...

https://connect.mayoclinic.org/comment/917235/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

@sophiarose: I am awaiting my 4th PRRT early December 2024. How is your affected arm? What...

https://connect.mayoclinic.org/comment/1161212/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22 8:30pm

No meds before Lanreotide. I have had yearly CAT scans. The annual scan this year showed...

https://connect.mayoclinic.org/comment/1171345/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10 4:03pm

Hopefully there is someone out there still monitoring this. I have chronic NET that started in...

https://connect.mayoclinic.org/comment/1171106/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10 9:11am

Neuroendocrine Tumors (NETs) Support Group