Neuroendocrine Tumors (NETs): Discussions | Page 25

Thank you so much for the information. I’ll start Lutethera infusion on February 6th . I...

https://connect.mayoclinic.org/comment/995130/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2024

I'm curious - do you have lesions in your liver that are considered cancerous? While 'waiting',...

https://connect.mayoclinic.org/comment/917145/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

That is fantastic! I believe they said 15% isn't functioning. Not sure about the burden. What...

https://connect.mayoclinic.org/comment/1335556/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26 10:36am

Sorry you haven’t had luck with the lanreotide injections. My husband was diagnosed as a high...

https://connect.mayoclinic.org/comment/1050488/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

Cyst in the liver are pretty common. I have several. They are only a problem if...

https://connect.mayoclinic.org/comment/818581/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

The hematologist's PA called me yesterday with my scan results. I have small tumors in my...

https://connect.mayoclinic.org/comment/809220/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

My understanding is a grade 3 of the lung is considered small cell or non small...

https://connect.mayoclinic.org/comment/813610/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

I know Dr. Sonbol myself. Started off with CAPTEM and everything shrunk. I completed 13 cycles...

https://connect.mayoclinic.org/comment/1123223/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2024

I have NET cancer of the liver it started in the small intestine tumor was removed...

https://connect.mayoclinic.org/comment/750858/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2022

@susan481 Welcome to Mayo Connect. I have never heard the terms interval progression. Where did you...

https://connect.mayoclinic.org/comment/1326220/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13 8:26am

Your tracking great with being a strong advocate for your son's health with this diagnosis. Our...

https://connect.mayoclinic.org/comment/1288159/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 11:07am

Sorry for the delay in responding. Where are things today? Any changes? I have a pancreatic...

https://connect.mayoclinic.org/comment/1143967/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2024

I’m 63, no systems at all. NET discovered while getting a hernia repaired in April of...

https://connect.mayoclinic.org/comment/837694/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Hi,Sorry to hear about your diagnosis. One thing doctors and research haveshown is that most neuroendicrine...

https://connect.mayoclinic.org/comment/90131/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Hello @bmkelldog! I completely understand your frustration! Diagnosing and then locating insulinomas, due to their small...

https://connect.mayoclinic.org/comment/1339069/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1 10:53am

I have an injection of 125ml Lanreotide every 4 weeks, to stablise my NET in my...

https://connect.mayoclinic.org/comment/1352421/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20 11:54am

Thank you Colleen. I was told I will have a distal pancreatic surgery and that it...

https://connect.mayoclinic.org/comment/805137/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

I understand your fears. I hope you get to the bottom of what's causing your symptoms....

https://connect.mayoclinic.org/comment/1384222/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1 12:14pm

I too respect your decision. But I can tell you that my diagnosis was stage IV....

https://connect.mayoclinic.org/comment/942810/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 6, 2023

I understand how you are feeling, my two youngest were 6 when I was diagnosed with...

https://connect.mayoclinic.org/comment/800359/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Neuroendocrine Tumors (NETs) Support Group