Neuroendocrine Tumors (NETs): Discussions | Page 24

Great Info. I am so sorry to hear of your reoccurrences and now mets to the...

https://connect.mayoclinic.org/comment/896402/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

My sister was diagnosed with a well differentiated Pancreatic Neuroendocrine tumor Grade 3 Stage 4. It...

https://connect.mayoclinic.org/comment/1105243/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14 8:22am

In reply to your questions, I had breast cancer 9 years ago, so periodically have scans...

https://connect.mayoclinic.org/comment/1167626/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3 9:44pm

I grew up in Oklahoma my Dad died of congestive heart failure my step mom died...

https://connect.mayoclinic.org/comment/845761/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Keep us posted! After my first 2 surgeries to remove/ablate a total of 11 insulinomas, the...

https://connect.mayoclinic.org/comment/896644/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

I had pancreatic surgery in February. Have metastases in liver. Just had my first Lanreotide injection...

https://connect.mayoclinic.org/comment/826603/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

That's fantastic news! The CAP/TEM combo has also worked well for us also. We got 80%...

https://connect.mayoclinic.org/comment/844065/

Discussion: Keep Fighting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2023

Thank you for your prompt response. Yes, she has NETS with liver metastasis. This is a...

https://connect.mayoclinic.org/comment/167644/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2017

Patrick, I would like to know more about your regimen and diet. I was diagnosed this...

https://connect.mayoclinic.org/comment/776233/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Hello Karen (@immmm) - Welcome to Mayo Connect, thank you for being an advocate for your...

https://connect.mayoclinic.org/comment/167642/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2017

Do any of You had 11C-5-hydroxy-tryptophan PETCT or know if Your facilities offer it. What was...

https://connect.mayoclinic.org/comment/807185/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Yes it is. My three large tumors on my pancreas are about half the size in...

https://connect.mayoclinic.org/comment/836328/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

The VA said they tested and said they were not related.....I am finished treatment, the VA...

https://connect.mayoclinic.org/comment/284785/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 21, 2019

Hi, I am reading your posts with interest. I have a 4x3 cm neuroendocrine metastatic tumor...

https://connect.mayoclinic.org/comment/1161774/

Discussion: Any tips about Cytoreductive, debulking Surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23 8:19pm

I would also recommend you have both types of petscans done. It took 5 years to...

https://connect.mayoclinic.org/comment/932546/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

I’m sorry you’re going through this. My husband had the same surgery except for the liver...

https://connect.mayoclinic.org/comment/992356/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 9:50am

Hello @beachboyarkansas and welcome to the NETs support group on Mayo Connect. I really appreciate you...

https://connect.mayoclinic.org/comment/1111157/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24 3:26pm

Unfortunately, I was not accepted to the trial study (COMPOSE). In addition to neuroendocrine cancer in...

https://connect.mayoclinic.org/comment/839259/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2023

I have an unknown primary NET maybe intestines It has metastasized to my liver periportal lymph...

https://connect.mayoclinic.org/comment/943430/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

Hello @jhilbish, I'm glad to hear that your husband's liver embolization is over now. Will be...

https://connect.mayoclinic.org/comment/787656/

Discussion: NETs what to eat? What to avoid?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Neuroendocrine Tumors (NETs) Support Group