Neuroendocrine Tumors (NETs): Discussions | Page 22

Hi Colleen Young, I had a successful 'bland embolization' on my liver. Apparently there is a...

https://connect.mayoclinic.org/comment/1460227/

Discussion: Cryoablation & Cementoplasty Treatment for NET Bone Metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2025

Hi, Any word about why you have a fatty liver? Any idea? I'm breaking my brain...

https://connect.mayoclinic.org/comment/1376540/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

Must be. My pancreatic tumor and largest liver lesion started off around the same size 8x6cm....

https://connect.mayoclinic.org/comment/1356881/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2025

In rare circumstances (oligometastatic PDAC), we would consider aggressive treatment of metastatic liver disease after a...

https://connect.mayoclinic.org/comment/1315785/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: Archive

Support Group: Pancreatic Cancer

Posted: May 29, 2025

That is great that you had good results with Y90 and you toldetsted well. My husband...

https://connect.mayoclinic.org/comment/1338056/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2025

Hi @tlambeth70. Welcome to Mayo Connect. As @dbamos1945 suggested, here is the link to find a...

https://connect.mayoclinic.org/comment/1507127/

Discussion: Husband has miliary seeding metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 9:52am

@t26 My wife had very similar surgery as you. Mass on pancreas was removed, tail of...

https://connect.mayoclinic.org/comment/834063/

Discussion: Anyone have surgery for metastatic PNET done in stages?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

In reply to Blue Dane: I was very recenty diagnosed with 1 NET in my liver...

https://connect.mayoclinic.org/comment/813633/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Thank you and we feel the same way. Why not monitor at this point. She feels...

https://connect.mayoclinic.org/comment/1111437/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

When I first got diagnosed with a pnet that spread to my liver, I had ascites....

https://connect.mayoclinic.org/comment/1191660/

Discussion: Anyone have experience with Acites?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 16, 2024

We are a year and half into our journey in living with NET. I can’t remember...

https://connect.mayoclinic.org/comment/932424/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

@fim I have a pancreatic neuroendocrine tumor with metastasis to the liver and bones. I do...

https://connect.mayoclinic.org/comment/1507936/

Discussion: Anyone have pancreatic neuroendocrine tumors with carcinoid syndrome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 9:04am

My brother was on a clinical trial using cabozantinib and nivolumab. Unfortunately, he had a lot...

https://connect.mayoclinic.org/comment/877316/

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Did your husband have side effects from the everolimus? I’m starting that tomorrow after larenotide injections...

https://connect.mayoclinic.org/comment/1370917/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14, 2025

Thank you. No, I’ve not had a PET scan. I had symptoms and a CT showed...

https://connect.mayoclinic.org/comment/1229014/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2025

They prefer to work on smaller-sized tumors and, although I had 5 done, that is unusual....

https://connect.mayoclinic.org/comment/1195166/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2024

I don't believe I have a team. Only symptoms are inconsistent bm's and some slight abdominal...

https://connect.mayoclinic.org/comment/1035653/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2024

@ahtaylor I would agree that you are blessed to be at Mayo and have such good...

https://connect.mayoclinic.org/comment/843301/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Welcome, @teresea. You may be interested interested in this related discussion: - Bland embolization or transarterial...

https://connect.mayoclinic.org/comment/982346/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2023

Good luck to you! I have Stage IV carcinoid originally in my ileum, and now in...

https://connect.mayoclinic.org/comment/1150045/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2024

Neuroendocrine Tumors (NETs) Support Group