Neuroendocrine Tumors (NETs) Support Group

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Comments (184)

@pjsheridan2022, I moved your question about small bowel obstruction and surgery to this related discussion. Click...

https://connect.mayoclinic.org/comment/877981/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

Hi, I’m new to post and fairly new to be diagnosed. In October 2025 I went...

https://connect.mayoclinic.org/comment/1552699/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 11 hours ago

Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My...

https://connect.mayoclinic.org/comment/1204588/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2025

Healing thoughts to emmepoppins’ husband and mbg20 following their NET small bowel resection surgeries! Since my...

https://connect.mayoclinic.org/comment/837119/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2023

My journey is similar except my lymph glands were all negative. I had a small bowel...

https://connect.mayoclinic.org/comment/1237462/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2025

@tgsenn70 I had weight loss & vomiting off & on with occasional abdominal pain that would...

https://connect.mayoclinic.org/comment/1427640/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

We have NET in our family. Dad had small bowel nets with successful surgery. He had...

https://connect.mayoclinic.org/comment/1539444/

Discussion: Blood Clots, DVT and Neuroendocrine Cancer - Be aware.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 9:21am

I am 2 weeks post op after small bowel resection. There was only the one tumor...

https://connect.mayoclinic.org/comment/1211186/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2025

Hi- the extensive surgery I had was a right hemicolotomy. I which takes out all of...

https://connect.mayoclinic.org/comment/102022/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2016

I'm not familiar with the term, "centriest" @panorman3. Perhaps the term is "mesentery"? The mesentery is...

https://connect.mayoclinic.org/comment/1257878/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2025

Yes, it came back with a vengeance, it had metastasized to peritoneal lining, liver, gallbladder, bladder,...

https://connect.mayoclinic.org/comment/1350383/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Each NETS case is unique; some have symptoms & some don’t. In my case surgery was...

https://connect.mayoclinic.org/comment/1350375/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

dougt, your Doc said no diet restrictions. Why only eat those 3 raw vegetables at lunch...

https://connect.mayoclinic.org/comment/1142890/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2024

Hello - sounds like you are doing well. I was diagnosed in May 2014 and on...

https://connect.mayoclinic.org/comment/101993/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2016

Thought I would give an update. I just made several trips to Mayo in Rochester. I...

https://connect.mayoclinic.org/comment/1248641/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2025

I'll just add my 2 cents. I've been chasing a Neuroendocrine dx for 2 yrs. I...

https://connect.mayoclinic.org/comment/1331489/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2025

@tgsenn70 It's a small world. I was referred to Dr Rose too back in '23. Due...

https://connect.mayoclinic.org/comment/1445215/

Discussion: NET Specialist: Can you share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2025

Hello Teresa, I had a CT scan in the hospital not a PET scan. The scan...

https://connect.mayoclinic.org/comment/940494/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

I had a small bowel resection for NETS cancer, age 62. Was hospitalized for 4 days...

https://connect.mayoclinic.org/comment/1272360/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

I had a small bowel resection in 2007 because my carcinoid tumor had grown around several...

https://connect.mayoclinic.org/comment/874036/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

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