Neuroendocrine Tumors (NETs) Support Group

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Comments (260)

@jessie1990 I only know the basics. They are both neuroendocrene tumors. GI carcinoids frequently cause digestive...

https://connect.mayoclinic.org/comment/1530121/

Discussion: What's the difference between typical lung carcinoids and GI?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 4:50pm

Hello- I have a carcinoid nodule in my lower left lobe it measures 2.3 cm by...

https://connect.mayoclinic.org/comment/1076510/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

See comments by annj as I also had my left lower lung removed due to a...

https://connect.mayoclinic.org/comment/1061396/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2024

Hello @gig666 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/1022080/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Last week was diagnosed with Neuro endocrine tumor "nodules.". It is referred as! Biopsy of carcinoid,...

https://connect.mayoclinic.org/comment/1021964/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2024

Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...

https://connect.mayoclinic.org/comment/987604/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

Wow, glad they found them. I, also, had a few other tumors in the lobe they...

https://connect.mayoclinic.org/comment/976769/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2023

Hello @kdgranger and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/945546/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 10, 2023

Hello @merenyc and welcome to the NET support group on Mayo Connect. There are other members...

https://connect.mayoclinic.org/comment/881988/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

@rogo @triveraderubio @bcraft @bluedane @amd12 @tatteesmom3 @pattirushing @hopeful33250 @larenn @colleenyoung @kristen3 This is an exciting study...

https://connect.mayoclinic.org/comment/871424/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2023

Hi @peggymariejackson as I mentioned in another one of your posts, I have lung NETs --...

https://connect.mayoclinic.org/comment/861009/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

I had some small lung nodules noticed on a scan 2 years ago and was being...

https://connect.mayoclinic.org/comment/831653/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hello @sylvian and welcome to the NETs discussion on Mayo Clinic Connect. As you can see,...

https://connect.mayoclinic.org/comment/827446/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Hi Sueannsellers, You are welcome yes that nurse practitioner's words very helpful and reinforced in much...

https://connect.mayoclinic.org/comment/815576/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

Welcome Shella- News that is life-changing is certainly an incredible kick to the head! Especially if...

https://connect.mayoclinic.org/comment/812961/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 17, 2023

Hello @larenn and welcome to Mayo Connect. It sounds as if you have a rather complex...

https://connect.mayoclinic.org/comment/793773/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Teresa, I did have a PET scan of the lungs and a biopsy of the largest...

https://connect.mayoclinic.org/comment/657598/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2021

Hello, @hopeful33250. Yes, this is my first carcinoid tumor and I have sought a second opinion...

https://connect.mayoclinic.org/comment/657531/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2021

Hello, everyone. I just signed up for this group and hope I'm in the right place....

https://connect.mayoclinic.org/comment/656143/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2021

@nannybb just back from gp doc said pain in my lung is nerve pain over haven...

https://connect.mayoclinic.org/comment/1448681/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2025

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