Neuroendocrine Tumors (NETs) Support Group

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Comments (201)

@hopeful33250 Yes, definitely! I was really a foodie before, and I always enjoyed cooking. But I...

https://connect.mayoclinic.org/comment/1474694/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 4 8:31pm

I ended up going to Mayo Clinic for a Whipple Procedure. Went to 3 of the...

https://connect.mayoclinic.org/comment/1260683/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2025

I understand how you are feeling, my two youngest were 6 when I was diagnosed with...

https://connect.mayoclinic.org/comment/800359/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

@tdylanbrowning, how did your Dad's Whipple surgery go? Was it confirmed that he has pancreatic neuroendocrine...

https://connect.mayoclinic.org/comment/767312/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2022

Please make sure you have a surgical NETS oncologist/specialist review the CT before you have a...

https://connect.mayoclinic.org/comment/1315225/

Discussion: New PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2025

What surgery did you have; a whipple or just a removal of the tumor? Where was...

https://connect.mayoclinic.org/comment/1354031/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2025

I have an appointment on April 17 with a NP and then Surgeon. They would not...

https://connect.mayoclinic.org/comment/1044836/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2024

@marilyn2525 So glad to hear that you are doing so well, Marilyn! Just wondering, did you...

https://connect.mayoclinic.org/comment/254910/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2019

Constant battle with hypoglycemia caused by excess insulin even after Whipple procedure. My blood sugar is...

https://connect.mayoclinic.org/comment/831065/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

I too have Gastrinomas had a perforated esophagus had major surgery to repair it. They discovered...

https://connect.mayoclinic.org/comment/1286959/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2025

Has anyone figured out how to gain weight consistently after their Whipple surgery? I lost nearly...

https://connect.mayoclinic.org/comment/985237/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

The Everolimus is likea miracle for my husband's insulinoma but he was never a candidate for...

https://connect.mayoclinic.org/comment/991653/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2024

Given the high rate of recurrence after Whipple, what are your thoughts on total pancreatectomy, especially...

https://connect.mayoclinic.org/comment/1308007/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 19, 2025

The only cure is removal of the primary tumor before it spreads. A Whipple surgery is...

https://connect.mayoclinic.org/comment/926217/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2023

Best wishes on your procedure!! I have had both a modified Whipple and a distal pancreatectomy...

https://connect.mayoclinic.org/comment/808398/

Discussion: Surgery of PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

My insurance keeps denying my DOTATATE PET scan. Is there anyone that has experienced this problem?...

https://connect.mayoclinic.org/comment/275701/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2020

My Whipple was in June 2023 and I completed my last treatment in November 2023. I...

https://connect.mayoclinic.org/comment/1227461/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2025

I’m still having trouble eating after my whipple surgery. It turns out after the doctors viewed...

https://connect.mayoclinic.org/comment/1445769/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 23, 2025

To people in the NorthEast Upstate Cancer Center now offers robotic surgery for Wipple procedure. Dr.Dhir...

https://connect.mayoclinic.org/comment/1001632/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2024

Initial recovery was challenging and took my intestines a little bit to recover. Yes, some nausea...

https://connect.mayoclinic.org/comment/808470/

Discussion: Surgery of PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

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