Neuroendocrine Tumors (NETs) Support Group

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Comments (229)

Sorry you are going through this also. I read also that there is a lower success...

https://connect.mayoclinic.org/comment/1027511/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2024

I ended up going to Mayo Clinic for a Whipple Procedure. Went to 3 of the...

https://connect.mayoclinic.org/comment/1260683/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2025

I understand how you are feeling, my two youngest were 6 when I was diagnosed with...

https://connect.mayoclinic.org/comment/800359/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

@tdylanbrowning, how did your Dad's Whipple surgery go? Was it confirmed that he has pancreatic neuroendocrine...

https://connect.mayoclinic.org/comment/767312/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2022

Hi @margariida. I am personally unaware of any adjuvant therapy after surgery for NETs specifically a...

https://connect.mayoclinic.org/comment/1546679/

Discussion: PNET grade 1: Anyone have adjuvant therapy after surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9 5:05pm

Please make sure you have a surgical NETS oncologist/specialist review the CT before you have a...

https://connect.mayoclinic.org/comment/1315225/

Discussion: New PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2025

Research shows after a Whipple Garlic & onions are generally a problem to digest. Personal views...

https://connect.mayoclinic.org/comment/1531821/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Mar 21 5:32am

What surgery did you have; a whipple or just a removal of the tumor? Where was...

https://connect.mayoclinic.org/comment/1354031/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2025

Wondering if anyone has had the Whipple? Need help with diet experiences afterwords. Hubby is going...

https://connect.mayoclinic.org/comment/1530349/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Mar 19 5:22am

I have an appointment on April 17 with a NP and then Surgeon. They would not...

https://connect.mayoclinic.org/comment/1044836/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2024

I started getting what seemed like hiccups but were longer and were actually forced gasps of...

https://connect.mayoclinic.org/comment/1444928/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Nov 22, 2025

@marilyn2525 So glad to hear that you are doing so well, Marilyn! Just wondering, did you...

https://connect.mayoclinic.org/comment/254910/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2019

Constant battle with hypoglycemia caused by excess insulin even after Whipple procedure. My blood sugar is...

https://connect.mayoclinic.org/comment/831065/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

@lindabees Hi, it has been awhile since my last tweet. My wife had Whipple Robotic Surgery....

https://connect.mayoclinic.org/comment/1576662/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17 11:40am

I too have Gastrinomas had a perforated esophagus had major surgery to repair it. They discovered...

https://connect.mayoclinic.org/comment/1286959/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2025

Has anyone figured out how to gain weight consistently after their Whipple surgery? I lost nearly...

https://connect.mayoclinic.org/comment/985237/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

Given the high rate of recurrence after Whipple, what are your thoughts on total pancreatectomy, especially...

https://connect.mayoclinic.org/comment/1308007/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: Archive

Support Group: Pancreatic Cancer

Posted: May 19, 2025

The only cure is removal of the primary tumor before it spreads. A Whipple surgery is...

https://connect.mayoclinic.org/comment/926217/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2023

The Everolimus is likea miracle for my husband's insulinoma but he was never a candidate for...

https://connect.mayoclinic.org/comment/991653/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2024

Best wishes on your procedure!! I have had both a modified Whipple and a distal pancreatectomy...

https://connect.mayoclinic.org/comment/808398/

Discussion: Surgery of PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

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