Neuroendocrine Tumors (NETs) Support Group | Page 2

Hello @bnjncrew I hope that your husband is doing well with his PRRT treatments. We have...

https://connect.mayoclinic.org/comment/991222/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2024

Hello @mcwjr189, Yes, there are a number of Connect members who have had that treatment, and...

https://connect.mayoclinic.org/comment/1557861/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 3:05pm

Hi again @kjstein I appreciate you sharing your personal experience with PRRT as well as the...

https://connect.mayoclinic.org/comment/713819/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2022

I guess this is the end of the run on PRRT. I have lung nets with...

https://connect.mayoclinic.org/comment/257060/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2021

@bren1 hi do you do any maintenance after prrt? My husband with pnet ki 5% is...

https://connect.mayoclinic.org/comment/1589048/

Discussion: PRRT Treatment: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2 11:33am

@markmark007 Will the additional PRRT sessions address the skull metastases? I haven't had PRRT, so I...

https://connect.mayoclinic.org/comment/1412783/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 10, 2025

My experience on (Beta) PRRT was - tumours taking off, so they took me off PRRT....

https://connect.mayoclinic.org/comment/1408799/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

Hello @sophiarose, I'm sorry to hear that your MRI results were not what you had hoped...

https://connect.mayoclinic.org/comment/1028562/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2024

Hi, My dr has recommended the PRRT treatments. Did you have any side effects from the...

https://connect.mayoclinic.org/comment/828023/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Hello @donbarks and welcome to the NETs support group on Mayo Connect. I'm glad to see...

https://connect.mayoclinic.org/comment/1498145/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 3:07pm

Those that have had 4sessions of Lutathera PRRT: How long were you feeling good with no...

https://connect.mayoclinic.org/comment/1354306/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2025

They have PRRT in Edmonton I think. I would make the trip as its only for...

https://connect.mayoclinic.org/comment/1345097/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

My personal experience is prrt is a four hour long session finishing up with a landreotide...

https://connect.mayoclinic.org/comment/1258436/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2025

I had PRRT for metastatic tumors in my liver. The plan is no treatment until they...

https://connect.mayoclinic.org/comment/1060197/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

I second dbamos1945 comment on PRRT, the doctors will tell you that the true results won't...

https://connect.mayoclinic.org/comment/1149811/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2024

Hi @gapsc, these are good questions to ask your oncologist regarding the COVID vaccine and its...

https://connect.mayoclinic.org/comment/257061/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2021

@hammerhead225: I received similar advice from a surgeon when my NET sm. intestine primary w/ liver...

https://connect.mayoclinic.org/comment/1593817/

Discussion: Complicated NET Surgery Needed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8 4:56pm

Dr. Halperin is good. I see him for my PRRT treatments.

https://connect.mayoclinic.org/comment/1532070/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 11:43am

@zacharycat My progression and treatments: diagnosed with Nets stage 4 mets to liver Jan. 2021, well...

https://connect.mayoclinic.org/comment/1537920/

Discussion: Is anyone taking cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 10:59am

I had no real side effects to prrt. I was glad to get off chemo for...

https://connect.mayoclinic.org/comment/1500752/

Discussion: Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 9:18am