Neuroendocrine Tumors (NETs): Discussions | Page 2

I am also interested in Alpha PRRT (had Lutathera in 2024), so please keep us updated...

https://connect.mayoclinic.org/comment/1537840/

Discussion: Is anyone taking cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 9:43am

@tgsenn70 I'm sure you are looking forward to your husband getting this treatment. We have several...

https://connect.mayoclinic.org/comment/1415557/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Hello were you prescribed other treatments after PRRT? My husband will be doing PRRT soon but...

https://connect.mayoclinic.org/comment/1383995/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2025

@zacharycat My oncologist is at Mayo Arizona and he recommended the trial to me. My other...

https://connect.mayoclinic.org/comment/1538373/

Discussion: Is anyone taking cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 10:51pm

Hello @bnjncrew I hope that your husband is doing well with his PRRT treatments. We have...

https://connect.mayoclinic.org/comment/991222/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2024

I received PRRT at UAB with success. The treatment works on active sites. I have inactive...

https://connect.mayoclinic.org/comment/1531566/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20 3:06pm

I had 4 prrt sessions. All tumors shrank substantially making surgery more feasible. They continued me...

https://connect.mayoclinic.org/comment/1489283/

Discussion: Finished PRRT and I'm wondering about others' results.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 8:54am

Hi again @kjstein I appreciate you sharing your personal experience with PRRT as well as the...

https://connect.mayoclinic.org/comment/713819/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2022

I guess this is the end of the run on PRRT. I have lung nets with...

https://connect.mayoclinic.org/comment/257060/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2021

My experience on (Beta) PRRT was - tumours taking off, so they took me off PRRT....

https://connect.mayoclinic.org/comment/1408799/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

@panorman3 was his concern specifically addressed to PRRT, treatment?

https://connect.mayoclinic.org/comment/1480352/

Discussion: Anyone had radiation for carcoinoid in Mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 9:27am

Hello @sophiarose, I'm sorry to hear that your MRI results were not what you had hoped...

https://connect.mayoclinic.org/comment/1028562/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2024

Hi, My dr has recommended the PRRT treatments. Did you have any side effects from the...

https://connect.mayoclinic.org/comment/828023/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

@markmark007 Will the additional PRRT sessions address the skull metastases? I haven't had PRRT, so I...

https://connect.mayoclinic.org/comment/1412783/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 10, 2025

@vinnie694 do not lknow what PRRT is? versus radiation

https://connect.mayoclinic.org/comment/1480639/

Discussion: Anyone had radiation for carcoinoid in Mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 2:01pm

Hello @ericmitre1963, and welcome to the NETs support group on Mayo Clinic Connect. I see that...

https://connect.mayoclinic.org/comment/1534883/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 7:57am

Those that have had 4sessions of Lutathera PRRT: How long were you feeling good with no...

https://connect.mayoclinic.org/comment/1354306/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2025

They have PRRT in Edmonton I think. I would make the trip as its only for...

https://connect.mayoclinic.org/comment/1345097/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

My personal experience is prrt is a four hour long session finishing up with a landreotide...

https://connect.mayoclinic.org/comment/1258436/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2025

Endocrine tumors are difficult to diagnosed and in our opinion, difficult to treat. My husband was...

https://connect.mayoclinic.org/comment/1498542/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 8:36am

Neuroendocrine Tumors (NETs) Support Group