Neuroendocrine Tumors (NETs): Discussions | Page 2

Read the side effects of Lanreotide they include pancreatitis.

https://connect.mayoclinic.org/comment/926206/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2023

I was on lanreotide for 10 months and it was horrible! All the symptoms you described...

https://connect.mayoclinic.org/comment/940448/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Great news What is the difference between octreotide and lanreotide I currently switched doctors and she...

https://connect.mayoclinic.org/comment/727432/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2022

How often do you get Lanreotide?

https://connect.mayoclinic.org/comment/855629/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6, 2023

Maybe try the Lanreotide injection

https://connect.mayoclinic.org/comment/1306422/

Discussion: Tumor w/ minor grow with no Octreotide & larger growth w/ the shot

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17 6:04pm

Hello @gneiss50 I appreciate your update after your visit to MD Anderson. It sounds like you...

https://connect.mayoclinic.org/comment/827204/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

How do you feel right now? You might do well with a drug like Lanreotide to...

https://connect.mayoclinic.org/comment/1340421/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3 12:30pm

I wouldn’t mind at all but it’s lengthy 😁 2008-At Stanford Specialists:Distal pancreatectomy with splenectomy 2009-Began...

https://connect.mayoclinic.org/comment/978180/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2023

I found this info on the internet. Might be useful to understand these drugs. Octreotide is...

https://connect.mayoclinic.org/comment/1250720/

Discussion: New and concerned about my wife.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 6:31am

Hi, It is lanreotide. Thanks, Penny

https://connect.mayoclinic.org/comment/799689/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Yes, I have elevated blood sugar and hair thinning as a side effect of Lanreotide treatment....

https://connect.mayoclinic.org/comment/1208239/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 9:37am

I agree , but it is an option for when Lanreotide stops working!

https://connect.mayoclinic.org/comment/1356121/

Discussion: New approved drug for pNETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 11:54am

That’s wonderful. The Lanreotide is not working on my sister. 😔

https://connect.mayoclinic.org/comment/1039053/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2024

I'm sorry your partner is going through this. I know how disheartening it is when the...

https://connect.mayoclinic.org/comment/1329866/

Discussion: PRRT and Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 11:28am

what is the difference between Lanreotide and prrt?

https://connect.mayoclinic.org/comment/1257523/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14 5:36am

His oncologist provided the form. The form is called PANO Service Request Form. PANO stands for...

https://connect.mayoclinic.org/comment/1423184/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25 11:56am

Hi Ocreotide and Lanreotide are administered differently and some individuals may have distinct side effects and...

https://connect.mayoclinic.org/comment/1429026/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2 11:48am

That is wonderful that the node is shrinking, @rogerstc. I am sure you are very pleased...

https://connect.mayoclinic.org/comment/1014275/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2024

Hello @dbmenger, Has your doctor offered you an alternative treatment if you discontinue the Lanreotide? If...

https://connect.mayoclinic.org/comment/1248950/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2 6:42pm

My PET CT last year was actually rescheduled due to a conflict with my lanreotide injection....

https://connect.mayoclinic.org/comment/795297/

Discussion: PET Ga-68 Scan Scheduling vs. Most Recent Lanreotide Injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Neuroendocrine Tumors (NETs) Support Group