Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,009 total results

Comments (931)

Read the side effects of Lanreotide they include pancreatitis.

https://connect.mayoclinic.org/comment/926206/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2023

How often do you get Lanreotide?

https://connect.mayoclinic.org/comment/855629/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6, 2023

Great news What is the difference between octreotide and lanreotide I currently switched doctors and she...

https://connect.mayoclinic.org/comment/727432/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2022

I wouldn’t mind at all but it’s lengthy 😁 2008-At Stanford Specialists:Distal pancreatectomy with splenectomy 2009-Began...

https://connect.mayoclinic.org/comment/978180/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2023

I was on lanreotide for 10 months and it was horrible! All the symptoms you described...

https://connect.mayoclinic.org/comment/940448/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Hi, It is lanreotide. Thanks, Penny

https://connect.mayoclinic.org/comment/799689/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Hello @gneiss50 I appreciate your update after your visit to MD Anderson. It sounds like you...

https://connect.mayoclinic.org/comment/827204/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

How do you feel right now? You might do well with a drug like Lanreotide to...

https://connect.mayoclinic.org/comment/1340421/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2025

Maybe try the Lanreotide injection

https://connect.mayoclinic.org/comment/1306422/

Discussion: Tumor w/ minor grow with no Octreotide & larger growth w/ the shot

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2025

That’s wonderful. The Lanreotide is not working on my sister. 😔

https://connect.mayoclinic.org/comment/1039053/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2024

I agree , but it is an option for when Lanreotide stops working!

https://connect.mayoclinic.org/comment/1356121/

Discussion: New approved drug for pNETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

I'm sorry your partner is going through this. I know how disheartening it is when the...

https://connect.mayoclinic.org/comment/1329866/

Discussion: PRRT and Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

Yes, I have elevated blood sugar and hair thinning as a side effect of Lanreotide treatment....

https://connect.mayoclinic.org/comment/1208239/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

I found this info on the internet. Might be useful to understand these drugs. Octreotide is...

https://connect.mayoclinic.org/comment/1250720/

Discussion: New and concerned about my wife.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2025

I had intestine resection to remove discover nets in my intestines. Removal of ovaries to remove...

https://connect.mayoclinic.org/comment/1425191/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2025

what is the difference between Lanreotide and prrt?

https://connect.mayoclinic.org/comment/1257523/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2025

Hello @dbmenger, Has your doctor offered you an alternative treatment if you discontinue the Lanreotide? If...

https://connect.mayoclinic.org/comment/1248950/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2025

That is wonderful that the node is shrinking, @rogerstc. I am sure you are very pleased...

https://connect.mayoclinic.org/comment/1014275/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2024

Thanks for your update. I’ll have a 3rd injection of Lanreotide next week and have a...

https://connect.mayoclinic.org/comment/937328/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Also getting lanreotide shot once a month.

https://connect.mayoclinic.org/comment/1398734/

Discussion: Anyone taking Cabometyx?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2025

Follow

8209

2 hours ago

Follow

10077

5 hours ago

Digestive Health

Follow

18361

5 hours ago

Melanoma & Skin Cancer

Follow

1079

6 hours ago

Cancer: Managing Symptoms

Follow

5681

8 hours ago