Neuroendocrine Tumors (NETs) Support Group

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Comments (46)

Hello @caitrina and welcome to Mayo Connect. I am so glad that you found this forum....

https://connect.mayoclinic.org/comment/777852/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2022

Three tests were done - Sept 2015, April 2016 and Oct 2016. The Sept 2015 showed...

https://connect.mayoclinic.org/comment/283430/

Discussion: NETest from WREN Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2020

I am so sorry I didn't respond earlier as I have been away for the last...

https://connect.mayoclinic.org/comment/770234/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2022

Sorry. Had to go back and read my medical records. The first one was found by...

https://connect.mayoclinic.org/comment/749888/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

Here is a discussion group that might be of interest to you, @mimisayhi --Need help with...

https://connect.mayoclinic.org/comment/1003434/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 8:50am

Hello, My darling husband, age 72, was diagnosed with a well-defined NET on his ileum this...

https://connect.mayoclinic.org/comment/812435/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

I hope your issues resolve quickly and the plan goes well. This past year I've had...

https://connect.mayoclinic.org/comment/749896/

Discussion: Intestinal Blockage with NETs: Anyone else?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

My situation sounds a little similar in that they marked my tumor from a CT scan...

https://connect.mayoclinic.org/comment/944168/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...

https://connect.mayoclinic.org/comment/800545/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2023

I would be curious to know what research you did that pointed you to Mayo? I...

https://connect.mayoclinic.org/comment/85560/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2017

My metestatic carcinoid cancer was discovered by accident when my GYN was doing an endoscopic look...

https://connect.mayoclinic.org/comment/827308/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

He has never had symptoms of carcinoid syndrome yet so we are hopeful there are no...

https://connect.mayoclinic.org/comment/137533/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

Hi Joan So you are one of the 75-80 families they have in the study. I...

https://connect.mayoclinic.org/comment/163587/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2017

Hey Yes the CT was ordered because of suspected diverticulitis. But the net in my ilium...

https://connect.mayoclinic.org/comment/1010732/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6 3:03pm

Hi @hopeful33250 and thanks for reaching out. I went to the hospital on August 30th with...

https://connect.mayoclinic.org/comment/942618/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

lots! And trying to get my oncologist or surgeon to call is not working! I have...

https://connect.mayoclinic.org/comment/1003419/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 8:37am

My wife (NETs) and I are very interested in nutrition. In 2015 and 2016 she had...

https://connect.mayoclinic.org/comment/275687/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2019

Morning! My primary was on my ilieum which metastasized to my liver and pancreas. I was...

https://connect.mayoclinic.org/comment/897949/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

i just had surgery for a NET in my illeum (end of small bowel but surgeon...

https://connect.mayoclinic.org/comment/1022718/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25 9:30pm

So sorry for the delayed response. I wish I had some useful info for what you...

https://connect.mayoclinic.org/comment/1028476/

Discussion: I had a right hemicolectomy 6 days ago. What helps nausea?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6 7:30am

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