Neuroendocrine Tumors (NETs) Support Group

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Comments (2,335)

I'm sorry you have to through this. CT is a common imaging test. But MRI is...

https://connect.mayoclinic.org/comment/1350256/

Discussion: Has anyone had a CT Triple Phase Liver test after the removal of Net.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Me. 2 yrs. PNET with liver mets, stage 4. Also endometrial cancer There is a good...

https://connect.mayoclinic.org/comment/1225138/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2025

Update: interval progression with growth in both lobes of liver, growth of pancreatic mass, probably colon,...

https://connect.mayoclinic.org/comment/1326182/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025

There are many liver directed therapies available, including surgery. Different forms of embolizations, ablation, histotripsy, etc....

https://connect.mayoclinic.org/comment/1294976/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2025

Thanks for sharing your story. My doctor told me good chance my next one would probably...

https://connect.mayoclinic.org/comment/1236677/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2025

The Y 90 treatment was to my husband‘s liver, 1/2 at a time, after a mapping...

https://connect.mayoclinic.org/comment/1055461/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Good morning all, I have NET, pancreas to liver. I don’t have diabetes but the numerous...

https://connect.mayoclinic.org/comment/836139/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

I have NET metastasis liver cancer I have been told by 3 drs that they don’t...

https://connect.mayoclinic.org/comment/835279/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

@gangcarotid1 my primary is in my pancreas and spread primarily to my liver. I also have...

https://connect.mayoclinic.org/comment/1411076/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2025

Hello @willam and welcome to the NETs support group on Mayo Connect. You ask an interesting...

https://connect.mayoclinic.org/comment/883410/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

My husband just had esophageal cancer identified after a CT scan due to a car accident....

https://connect.mayoclinic.org/comment/1455605/

Discussion: Siewert type 2 Gastroesophageal adenocarcinoma

Support Group: Esophageal Cancer

Posted: Dec 7, 2025

Hello, how long since you were originally diagnosed with NETs? I am trying to determine what...

https://connect.mayoclinic.org/comment/952977/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Hello..I am 29 yr old boy from India diagoned with net tumor in small bowel and...

https://connect.mayoclinic.org/comment/786092/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

I also have been diagnosed with liver NETS here in Panama. My oncologist started me on...

https://connect.mayoclinic.org/comment/1539378/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 8:18am

I had severe stomach pain for years, VA doctor gave me acid reflux medicine and been...

https://connect.mayoclinic.org/comment/879728/

Discussion: Adenocarcinoma with Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

My wife was diagnosed with NET with mass on tail of pancreas, and too many tumors...

https://connect.mayoclinic.org/comment/866558/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

I was diagnosed with a 2 cm grade 2 with Ki67 4% in the terminal ileum....

https://connect.mayoclinic.org/comment/1365552/

Discussion: 14 CM PNET w/ one year post resection. When will I see reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7, 2025

Thought I would give an update. I just made several trips to Mayo in Rochester. I...

https://connect.mayoclinic.org/comment/1248641/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2025

I had my Lutathera treatments last year, Outside of fatigue for a few days, I did...

https://connect.mayoclinic.org/comment/1525847/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13 9:16am

If the cancer has not metastasized and they are willing to do the surgery it is...

https://connect.mayoclinic.org/comment/1088907/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2024

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