Neuroendocrine Tumors (NETs) Support Group | Page 18

I also have Grade 2, KI - 67 of 6.6% Stage 4, metastasized from small intestines...

https://connect.mayoclinic.org/comment/1261758/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2025

That’s great you’re doing better, I had a lot of symptoms bloating, severe fatigue and stomach...

https://connect.mayoclinic.org/comment/1216857/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

I received my Mayo Clinic e- consult. They agreed with the biopsy finding I had from...

https://connect.mayoclinic.org/comment/1161712/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...

https://connect.mayoclinic.org/comment/1121892/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2024

My husband was diagnosed with GITract small bowel Neuroendocrine tumor Stage 4 Grade 2 well-differentiated KY...

https://connect.mayoclinic.org/comment/1120029/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

My condition is similar stage 4 due to it metastasizing to the liver, origin is the...

https://connect.mayoclinic.org/comment/1106025/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

I am so relieved to hear those two concerns have been resolved in your favor. Thank...

https://connect.mayoclinic.org/comment/163993/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

I have been on sandostatin since sept 2014. After extensive surgery to remove carcinoids on large...

https://connect.mayoclinic.org/comment/137527/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2017

Hi Carrie! I am do sorry to hear your news and I completely empathize with your...

https://connect.mayoclinic.org/comment/1073202/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2024

Hi, I was diagnosed 8-7-23 with NET of the small intestines. I am a Grade 2...

https://connect.mayoclinic.org/comment/1015199/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2024

I was diagnosed a year ago with a NET on the valve that connects the large...

https://connect.mayoclinic.org/comment/986403/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2023

I was diagnosed with Neuroendocrine tumors in my liver and small intestines back in December 2022....

https://connect.mayoclinic.org/comment/870969/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2023

I have an unknown primary They think in my small intestines but it isn’t showing on...

https://connect.mayoclinic.org/comment/862966/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2023

I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...

https://connect.mayoclinic.org/comment/831689/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hi - I hope your meeting with the specialists was good. Would you mind telling me...

https://connect.mayoclinic.org/comment/820013/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Hi, I am living in Adelaide. South Australia. I went through chemo with non Hodgkins lymphoma...

https://connect.mayoclinic.org/comment/819077/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

I am so sorry I didn't respond earlier as I have been away for the last...

https://connect.mayoclinic.org/comment/770234/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2022

I've had six surgeries for chronic small bowels obstructions since 2002. My intestinal tract shuts down...

https://connect.mayoclinic.org/comment/1479961/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 11 5:36pm

@fraaseo: Great explanation of mesentery cancer & surgical risks! You answered quandary for many NET patients...

https://connect.mayoclinic.org/comment/1402022/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2025

Hi, I was in middle of this and my msg just disappeared..lol but anyway, no my...

https://connect.mayoclinic.org/comment/1296038/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2025