Neuroendocrine Tumors (NETs): Discussions | Page 18

I had PRRT for metastatic tumors in my liver. The plan is no treatment until they...

https://connect.mayoclinic.org/comment/1060197/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

I went on to Ocreotide The first 3 injections I had side effects that weren’t so...

https://connect.mayoclinic.org/comment/868253/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

I have metastatic liver NETs (secondary to pancreatic), have been on the shot for a year...

https://connect.mayoclinic.org/comment/927801/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2023

Yes the oncologist sent me to palliative care but I really hate pain pills. They just...

https://connect.mayoclinic.org/comment/718894/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Jun 19, 2022

I agree it's hard being one's own advocate. I don't even know what I should be...

https://connect.mayoclinic.org/comment/1334787/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25 9:46am

Hi @harley4650 Deciding on PRRT, or any type of chemotherapy, is a big decision. Getting more...

https://connect.mayoclinic.org/comment/753432/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

I don't know why they said liver?? I have not been on anything for my stomach....

https://connect.mayoclinic.org/comment/1239487/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 8:26pm

They could not determine the primary or origin. Pet scan only lit up in the liver...

https://connect.mayoclinic.org/comment/1306214/

Discussion: Tumor w/ minor grow with no Octreotide & larger growth w/ the shot

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17 12:29pm

For lesions in section 5 and 8 of the liver, can you compare surgery vs SBRT...

https://connect.mayoclinic.org/comment/1311640/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 24 7:44am

I have pnets pancreatic primary many liver tumors they are functional gastrinomas grade 2 ki67 7%...

https://connect.mayoclinic.org/comment/1341847/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 5 5:33pm

I was diagnosed with a pnet metastasized to my liver and bones in 8/22. It was...

https://connect.mayoclinic.org/comment/1350623/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 7:49pm

Hi Margaret, every year my husband has a Dototate (sp?) PET scan. It is a more...

https://connect.mayoclinic.org/comment/764697/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

FWIW my wife, with a grade 2 stage 4 PNET with a large tumor on her...

https://connect.mayoclinic.org/comment/1320704/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5 8:36am

Day 4 update - as she transitioned from ice chips to Italian ice and Apple juice,...

https://connect.mayoclinic.org/comment/821091/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2023

Hi Joni, Hope you were able to get more of your questions answered during your zoom...

https://connect.mayoclinic.org/comment/670199/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2022

I have a NET but what’s a pNET? I have liver metastasis too. Could you tell...

https://connect.mayoclinic.org/comment/1071566/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

Hello @avawein I know you were scheduled for liver surgery on 10/21. I hope that all...

https://connect.mayoclinic.org/comment/647730/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2021

Hello @pnelson5220 and welcome! I appreciate you sharing about your NETs journey. The discovery and treatment...

https://connect.mayoclinic.org/comment/1393556/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

In my case: I was told that the NET in small bowel (near duodenum) metastasized to...

https://connect.mayoclinic.org/comment/1241121/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20 12:03am

I had chemo I am grade 2 ki-67 7% stage 4 to liver as far as...

https://connect.mayoclinic.org/comment/1290666/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26 5:17pm

Neuroendocrine Tumors (NETs) Support Group