Neuroendocrine Tumors (NETs): Discussions | Page 18

Hello dhtaylor! My HPB surgeon warned me that the medication used for NET care ( Somatulin/Lanreotide)...

https://connect.mayoclinic.org/comment/944197/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

Just about 1 year after starting Lanreotide. My initial diagnosis (discovered during a scan for another...

https://connect.mayoclinic.org/comment/729621/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

My wife, @Kim1965, was diagnosed with NET April 2022, with mass on tail of pancreas and...

https://connect.mayoclinic.org/comment/793540/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Thank you Teresa for the link to the Carcinoid Foundation. My symptoms were: blood in urine...

https://connect.mayoclinic.org/comment/267671/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2019

I received my Mayo Clinic e- consult. They agreed with the biopsy finding I had from...

https://connect.mayoclinic.org/comment/1161712/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23 5:24pm

Hello @kim1965 I'm glad that you were able to read the experience of @outlawcancer in order...

https://connect.mayoclinic.org/comment/817613/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Yes they say mine is not going to kill me but it’s necessary to have surgery....

https://connect.mayoclinic.org/comment/217187/

Discussion: Bladder Cancer: High Grade Neuroendocrine Carcinoma (Small Cell)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2018

Hello - one year ago August of ‘23 I was diagnosed with Acinar Pancreatic Cancer with...

https://connect.mayoclinic.org/comment/1166095/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1 8:50am

I had gerd for years so I had EGD’S a lot. Had a cholecystectomy 5 years...

https://connect.mayoclinic.org/comment/176519/

Discussion: Treatment for Stage IV Ampullary Cancer

Support Group: Cancer

Posted: Dec 1, 2017

I've had MRI'S and CT scans (5) with contrasting. Had my latest Friday my 12th chemo...

https://connect.mayoclinic.org/comment/807241/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

This is the first case of someone using this method I have seen on this Forum....

https://connect.mayoclinic.org/comment/1146038/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23 9:49am

We received a 2nd opinion from Dr.Lui in June 24, regarding having back fusion surgery with...

https://connect.mayoclinic.org/comment/1142516/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16 2:45pm

@tomrennie, how are you doing? Your case is similar to my wife’s. Our team is recommending...

https://connect.mayoclinic.org/comment/1038369/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 1:25pm

I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated...

https://connect.mayoclinic.org/comment/1162526/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25 9:36am

I hope you get a good report on your liver spot. I had a similar spot...

https://connect.mayoclinic.org/comment/754461/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2022

My wife (NETs) and I are very interested in nutrition. In 2015 and 2016 she had...

https://connect.mayoclinic.org/comment/275687/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2019

Hi, His primary is undetermined. It has metastisized to liver, lymph nodes, mesentery, and the fat...

https://connect.mayoclinic.org/comment/911173/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2023

@kaw627 @hopeful33250 @retiredinkazoo @lindaldotson @dbamos1945 From the e-mail I received from LACNETS: "Join us on Saturday,...

https://connect.mayoclinic.org/comment/972907/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 30, 2023

I’m stage IV grade 2. Neuroendocrine, Primary in small intestine, metastatic to liver and other areas....

https://connect.mayoclinic.org/comment/812339/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Stay positive! My husbands liver tumors have been as big as 9 cm ..up and down...

https://connect.mayoclinic.org/comment/1029025/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 5:57am

Neuroendocrine Tumors (NETs) Support Group