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Comments (368)
@vinnie694 Mine are similar to both, Small intestines with liver mets, stage 2, grade 4, Ki-67...
https://connect.mayoclinic.org/comment/1415454/
My NET story is similar to yours--small intestines metastasized to liver. I get the same monthly...
https://connect.mayoclinic.org/comment/1321054/
Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...
https://connect.mayoclinic.org/comment/1284362/
@swede79: I am assuming you have been diagnosed with Neuroendocrine tumor (carcinoid) cancer. Lanreotide 120 mg...
https://connect.mayoclinic.org/comment/1252202/
My husband was diagnosed with GTSBnet grade1-grade2 well-differented tumor 3 years ago. First you have to...
https://connect.mayoclinic.org/comment/1204614/
I had neuroendocrine tumors in my small intestines. I had surgery in 2017, the surgeon removed...
https://connect.mayoclinic.org/comment/1110182/
My husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid tumor March,2022. He had surgery...
https://connect.mayoclinic.org/comment/1048670/
Hi Colleen. I was have Nets in my cecum, small intestines, lymph nodes, liver and heart....
https://connect.mayoclinic.org/comment/971488/
Yes I have had one discovered about two years ago with a heart MRI. It was...
https://connect.mayoclinic.org/comment/907604/
I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...
https://connect.mayoclinic.org/comment/878862/
I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the...
https://connect.mayoclinic.org/comment/842035/
When I found out that I had to have surgery on my stomach because it was...
https://connect.mayoclinic.org/comment/835923/
My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen...
https://connect.mayoclinic.org/comment/829669/
Hi, My name is Penny. My wife, Cindy, had surgery on December 6 in which they...
https://connect.mayoclinic.org/comment/797408/
It’s never to late you come to the right place , I’m a Neuroendocrine survivor I...
https://connect.mayoclinic.org/comment/768090/
Good morning, I was diagnoses with Stage 4 NET's in December 2022 primary in small intestines...
https://connect.mayoclinic.org/comment/1476398/
I have short gut syndrome. I only have 2ft of my small intestines. I had a...
https://connect.mayoclinic.org/comment/1428178/
@fraaseo I live in Far North Qld Australia. I found out in 2021 I had net...
https://connect.mayoclinic.org/comment/1402161/
Thank you for your information of how your PNET was handled. While I am sure surgery...
https://connect.mayoclinic.org/comment/1354581/
Hi, I have had a resection in my small bowel 12/24. It took about a year...
https://connect.mayoclinic.org/comment/1271695/
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