Neuroendocrine Tumors (NETs) Support Group

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I too respect your decision. But I can tell you that my diagnosis was stage IV....

https://connect.mayoclinic.org/comment/942810/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 6, 2023

I understand how you are feeling, my two youngest were 6 when I was diagnosed with...

https://connect.mayoclinic.org/comment/800359/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Thank you for sharing. This is very good, helpful information. Im in Oklahoma, and have found...

https://connect.mayoclinic.org/comment/872994/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Jun 5, 2023

Thank you! I had my first CT scan after surgery and 3 Lan injections. No tumour...

https://connect.mayoclinic.org/comment/876264/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

STOMACH NET! Having a STOMACH NET is indeed an esoteric experience and different from the lung,...

https://connect.mayoclinic.org/comment/896811/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

So I am also grade 2 stage 4 ki-67 7% metatasic to both sides of the...

https://connect.mayoclinic.org/comment/978339/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2023

@fae As a fellow Wisconsin Badger, my wife has dealt with the past 9 months, similar...

https://connect.mayoclinic.org/comment/827529/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Always keeping the fight! Glad to hear you have a great experience at Dana Farber. Being...

https://connect.mayoclinic.org/comment/943748/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

@cangre82, a lot of us have done your path, and we tell you our story and...

https://connect.mayoclinic.org/comment/1074865/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 8:29am

My sisters has now spread to the peritoneam (lining of the abdomen), and pelvic area. She...

https://connect.mayoclinic.org/comment/1100726/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7 7:25am

I have had all stool tests, ct liver belly, pancreas and ldct lung which showed 6...

https://connect.mayoclinic.org/comment/823720/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

My husband also has one in the small intestine that metastasized to the liver & spine,...

https://connect.mayoclinic.org/comment/885632/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

I was diagnosed with multiple Net’s in the small bowel, and 16 Net’s on my liver...

https://connect.mayoclinic.org/comment/1023918/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27 5:52pm

100% agree, make sure the doctor is a NET specialist. I’m on my 3rd hospital. The...

https://connect.mayoclinic.org/comment/824035/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2023

@mollie59 As you probably know already, carcinoids or NETs are rather rare. I certainly recommend that...

https://connect.mayoclinic.org/comment/160164/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2017

Hello @osiejay26 and welcome to the NET discussion group on Mayo Connect. I can understand that...

https://connect.mayoclinic.org/comment/804430/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

I did not tolerate well the milk shakes, probably due to milk, but also cacao is...

https://connect.mayoclinic.org/comment/919089/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2023

Hi! I am also getting 4th mo SamotulineDepot injections due to small intestine NET primary with...

https://connect.mayoclinic.org/comment/810312/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Hi I am happy to engage a conversation on my personal email if you would like!...

https://connect.mayoclinic.org/comment/807004/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

I do not see my specialist until mid June, but I did see my gp. I...

https://connect.mayoclinic.org/comment/1075835/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 3:28pm

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