Neuroendocrine Tumors (NETs): Discussions | Page 17

No. No one realized what was going on until I went home 12 days post surgery....

https://connect.mayoclinic.org/comment/674116/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 23, 2022

I have neuroendocrine lung cancer stage 4, grade 1. Liver and bone nets. I've gotten good...

https://connect.mayoclinic.org/comment/1227132/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1 3:41pm

Good day, Yes, I think this is my case. Mine is 9mm and mean. I am...

https://connect.mayoclinic.org/comment/1350762/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18 7:03am

Your English is great and your story was easy to follow. Definitely do all the monitoring...

https://connect.mayoclinic.org/comment/1237831/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 8:42pm

I was recently diagnosed with (1) early stage lung cancer, (2) emphysema (3) DIPNECH with tumorlets...

https://connect.mayoclinic.org/comment/1181526/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2024

It sounds like you have very competent doctors advising you. I have a friend facing the...

https://connect.mayoclinic.org/comment/232963/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 8, 2019

@calimomma Hard to answer your question because you have a lot going on and I’m not...

https://connect.mayoclinic.org/comment/1232671/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9 1:24am

It’s really hard to advise someone as to what steps they should take, he would want...

https://connect.mayoclinic.org/comment/1377217/

Discussion: Atypical Carcinoid Tumor - lower left lobectomy. Radiation questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 23 8:44am

Oh nice! I didn't realize there were individual groups, that's super helpful. Thank you! No, I...

https://connect.mayoclinic.org/comment/1357875/

Discussion: Initial imaging and tests; what to expect after initial NETs diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 5:04pm

I was diagnosed with atypical carcinoid neuroendicrine tumors in March of 2022. I underwent surgery to...

https://connect.mayoclinic.org/comment/793653/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

@bdpp- Oh my word life just doesn't give us what we expect or want a lot...

https://connect.mayoclinic.org/comment/232992/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 13, 2019

I DID GO TO MDA FOR A SECOND OPINION. HOWEVER I AM AN ESTABLISHED PATIENT NOW....

https://connect.mayoclinic.org/comment/801887/

Discussion: Stage 4, High-Grade Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

Hi @ahtaylor -- I love your motto! I have always loved the "Never Give Up" poster...

https://connect.mayoclinic.org/comment/867775/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

I also have multifocal lung cancer. I am in Rochester now preparing for my CT scan...

https://connect.mayoclinic.org/comment/232767/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 10, 2018

Hi @jhhaas, I'm tagging fellow members like @mcohan @magnum2 @meryls12 @californiazebra who have experience with DIPNECH...

https://connect.mayoclinic.org/comment/976431/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2023

Hi @shella, I wanted to make sure you saw the helpful post from @merpreb. I have...

https://connect.mayoclinic.org/comment/815207/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 21, 2023

The Tumour in my spine is my secondary cancer I have unknown primary. I have had...

https://connect.mayoclinic.org/comment/810621/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

My husband has been fighting this since 2021, he had a tumor removed from his spine...

https://connect.mayoclinic.org/comment/1269480/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 2:36pm

Thank you for sharing your story. I hope your doctors can find a way to help...

https://connect.mayoclinic.org/comment/1198940/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2024

I am a lung cancer survivor. I was lucky my PCP ordered a CT scan just...

https://connect.mayoclinic.org/comment/1062273/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

Neuroendocrine Tumors (NETs) Support Group