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Public Support Group 413 total results
Comments (362)
Good morning, the small intestines was the primary source of my NET’s before metastasizing to my...
https://connect.mayoclinic.org/comment/1204419/
We did find this out that there is extra help for Medicare patients with the drug...
https://connect.mayoclinic.org/comment/1135041/
I guess I should introduce myself before I answer people. I am a NET patient at...
https://connect.mayoclinic.org/comment/134540/
My appt is July 11 with Dr. Stucky. I saw my general surgeon this morning and...
https://connect.mayoclinic.org/comment/176715/
My husband had to have an open surgery because his 3mm tumor was deep in his...
https://connect.mayoclinic.org/comment/1003834/
Your situation is one we all face and I am constantly retooling my diet based on...
https://connect.mayoclinic.org/comment/1003829/
My spouse was diagnosed with GEP-NET and "heavy load" of tumors on the the small intestines...
https://connect.mayoclinic.org/comment/959684/
May I ask how they found the carcinoid NET in your small intestines?
https://connect.mayoclinic.org/comment/884124/
Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...
https://connect.mayoclinic.org/comment/857723/
I was diagnosed with net cancer December 2020. Originated in small intestines and spread to liver....
https://connect.mayoclinic.org/comment/856717/
Yes I was diagnosed with net in May of last year in my small intestines
https://connect.mayoclinic.org/comment/835232/
Patrick, I would like to know more about your regimen and diet. I was diagnosed this...
https://connect.mayoclinic.org/comment/776233/
@dadcue NETS is most commonly found in small intestines. High or low blood sugars can be...
https://connect.mayoclinic.org/comment/1484330/
Same experience here with dietician giving printouts which I could have done myself. The food they...
https://connect.mayoclinic.org/comment/1474468/
Hello Jennifer, Bunky2078 laid it out almost exactly what I experienced. Distal pancreatectomy/splenectomy was just under...
https://connect.mayoclinic.org/comment/1448970/
@vinnie694 Mine are similar to both, Small intestines with liver mets, stage 2, grade 4, Ki-67...
https://connect.mayoclinic.org/comment/1415454/
My NET story is similar to yours--small intestines metastasized to liver. I get the same monthly...
https://connect.mayoclinic.org/comment/1321054/
Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...
https://connect.mayoclinic.org/comment/1284362/
@swede79: I am assuming you have been diagnosed with Neuroendocrine tumor (carcinoid) cancer. Lanreotide 120 mg...
https://connect.mayoclinic.org/comment/1252202/
My husband was diagnosed with GTSBnet grade1-grade2 well-differented tumor 3 years ago. First you have to...
https://connect.mayoclinic.org/comment/1204614/
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