Neuroendocrine Tumors (NETs) Support Group | Page 16

Oops I forgot to repost my thread about my journey before sending the last message to...

https://connect.mayoclinic.org/comment/1239033/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2025

There are a couple of important things in this situation. Creon is pancreatic enzyme replacement therapy...

https://connect.mayoclinic.org/comment/1675788/

Discussion: Creon

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21 7:05am

To people in the NorthEast Upstate Cancer Center now offers robotic surgery for Wipple procedure. Dr.Dhir...

https://connect.mayoclinic.org/comment/1001632/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2024

@dadcue NETS is most commonly found in small intestines. High or low blood sugars can be...

https://connect.mayoclinic.org/comment/1484330/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 10:56pm

@thunderdad5 I'm so sorry to hear you lost your wife. I wish you didn't have this...

https://connect.mayoclinic.org/comment/1656664/

Discussion: Small bowel resection: What is short & long term recovery like?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27 11:01am

Hi Colleen, My cancer is neuroendocrine small cell carcinoma originating in the gut and metastases to...

https://connect.mayoclinic.org/comment/1071318/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

@mgb20, I totally agree with @phyllisden ! It was probably 15 years before I was finally...

https://connect.mayoclinic.org/comment/831438/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Wow! Let me saw that I was treated like a rock star at Mayo in Jacksonville....

https://connect.mayoclinic.org/comment/770718/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2022

He was diagnosed in December 2019, had surgery in March 2020, I think the first six...

https://connect.mayoclinic.org/comment/899229/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

It’s so hard to generalize one experience to others except as an example. In 2014-15, I...

https://connect.mayoclinic.org/comment/1001387/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2024

@djchambers: I am sorry you are faced with this situation with NET cancer. Most of your...

https://connect.mayoclinic.org/comment/1418984/

Discussion: New NET in liver and small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 19, 2025

I was diagnosed a year ago with a NET on the valve that connects the large...

https://connect.mayoclinic.org/comment/986403/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2023

I was diagnosed with NET’s December, 2022. Started the same, small intestines and spread to the...

https://connect.mayoclinic.org/comment/842035/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

The Whipple procedure involves the resection of the head of the pancreas. This section is where...

https://connect.mayoclinic.org/comment/985469/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

@sposieneedshelp I was diagnosed 3 1/2 years ago with almost the same started in the small...

https://connect.mayoclinic.org/comment/1616982/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10 5:25am

I think it took about 6 months. I went on feeding tube it was so bad...

https://connect.mayoclinic.org/comment/1601278/

Discussion: Radioembolization Is My Next Step

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 8:14pm

I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...

https://connect.mayoclinic.org/comment/878862/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

I can help you here by my experience. I did not know there was such a...

https://connect.mayoclinic.org/comment/1667144/

Discussion: Why is seeing a NET specialist important? How to find one?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9 3:19pm

Hi there, fist off.. fellow Wisconsinite.....GoPackGo. back to the NETS. My hubs was diagnosed back in...

https://connect.mayoclinic.org/comment/1231196/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

I was diagnosed with stage 4 NET’s December 2022, started in small intestines and metastasized to...

https://connect.mayoclinic.org/comment/901156/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023