Neuroendocrine Tumors (NETs) Support Group

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Comments (881)

I will say a prayer for you! I am wondering if by any chance your Dr....

https://connect.mayoclinic.org/comment/747813/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2022

@sakota- Absolutely Joan. It does help for sure.I have to wait until early December for my...

https://connect.mayoclinic.org/comment/233064/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 18, 2019

I have been just diagnosed with a bronchial carcinoid. I thought my only option was surgical...

https://connect.mayoclinic.org/comment/1056379/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

I guess this is the end of the run on PRRT. I have lung nets with...

https://connect.mayoclinic.org/comment/257060/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2021

Recent diagnosed with lung nodule on lower left lobe 9mm first opinion says watch / wait...

https://connect.mayoclinic.org/comment/831587/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

@nannybb ya my pain seems to be my ribs also when I touch they hurt or...

https://connect.mayoclinic.org/comment/1447636/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2025

I have lung nets also. Had sbrt radiation for 2 of them and started sandostatin injections...

https://connect.mayoclinic.org/comment/939674/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

@tomrennie Good job finding a local NET surgeon for her! Great that our conversation helped someone...

https://connect.mayoclinic.org/comment/1432521/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

@nannybb I’ve read all of your responses, but I did not see a previous one regarding...

https://connect.mayoclinic.org/comment/1431871/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 5, 2025

SBRT, 5 Treatments total. See www.redjournal.org “Early-Stage Primary Lung Neuroendocrine Tumors Treated With Stereotactic Body Radiation...

https://connect.mayoclinic.org/comment/941923/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2023

Know that surgery is considered the “gold standard” treatment for lung NETs. You want it out...

https://connect.mayoclinic.org/comment/899337/

Discussion: Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Heavens YES ! I rarely had them before infusion chemo for bc , and after the...

https://connect.mayoclinic.org/comment/708314/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: May 14, 2022

Hi I'm new to this group I also have lung nets in both lungs on the...

https://connect.mayoclinic.org/comment/1328498/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2025

Yes, l will write back 5/15. Also, at UMASS l am ha ing a team l...

https://connect.mayoclinic.org/comment/1060538/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

@nannybb just back from gp doc said pain in my lung is nerve pain over haven...

https://connect.mayoclinic.org/comment/1448681/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2025

Wow @lastround that's terrible what the first two doctors told you. Glad you saw a third!...

https://connect.mayoclinic.org/comment/861458/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

size doesn't really matter, it depends more on the type of cancer in the lung. They...

https://connect.mayoclinic.org/comment/815650/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 22, 2023

I have had a 111IN-Octreotide in 2013, and in 2014 a F-18 FDG PET/CT of the...

https://connect.mayoclinic.org/comment/186246/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2018

I have 2 NETS in my right lung. I am treating it with homeopathic tinctures, spiritual,...

https://connect.mayoclinic.org/comment/913605/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Hello, I was diagnosed in March '22 with neuroendocrine atypical carcinoid cancer. I had a partial...

https://connect.mayoclinic.org/comment/805534/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

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