Neuroendocrine Tumors (NETs): Discussions | Page 14

It just makes me nervous there is so few cases that I have found that a...

https://connect.mayoclinic.org/comment/952691/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Hi Teresa and tsabe2. At this time, I’m not able to provide any input to this...

https://connect.mayoclinic.org/comment/311781/

Discussion: Affinitor - Pneumonitis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2020

I was at Mass general last summer and they seem to employ the ‘let’s watch it...

https://connect.mayoclinic.org/comment/884361/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Hi I recently asked the same question about just getting a liver transplant and my surgeon...

https://connect.mayoclinic.org/comment/952416/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...

https://connect.mayoclinic.org/comment/1121892/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11 8:20pm

Was diagnosed in March of this year. Origin in mesentary lining.Metastasized to liver, and elsewhere. I...

https://connect.mayoclinic.org/comment/774825/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Nov 18, 2022

Yes. I had a Dotatate scan and the cancer has spread to my liver and 20...

https://connect.mayoclinic.org/comment/980712/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 14, 2023

My hematologist is the one who diagnosed my PNET due to extremely low platelet count. She...

https://connect.mayoclinic.org/comment/1049783/

Discussion: Anyone had a trend of their platelets going too low? What action?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 8:33pm

I have “innumerable” (probably about 80) liver mets. Unknown origin. Diagnosed January 2020. Grade 2/3, well-differentiated....

https://connect.mayoclinic.org/comment/796179/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

https://connect.mayoclinic.org/comment/775875/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

Hello @immmm I appreciate your posting this interesting question. Many of us have been diagnosed with...

https://connect.mayoclinic.org/comment/167643/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2017

I started taking Lanreotide 2/15/23. I had similar side effects at first until full blockage and...

https://connect.mayoclinic.org/comment/898816/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

davisnrn: I read your post I am going to be 70 and I am in my...

https://connect.mayoclinic.org/comment/1017749/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18 7:05am

If you are considered a candidate for surgery, my advice would be sooner than later. My...

https://connect.mayoclinic.org/comment/1065498/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10 12:50pm

I would appreciate the name of your Atlanta dr. I am recently diagnosed w metastatic neuroendocrine...

https://connect.mayoclinic.org/comment/1145370/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22 8:00am

Thank you I did LACNETS a few weeks ago they were all a wealth of knowledge...

https://connect.mayoclinic.org/comment/1143715/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 9:14pm

Hi, @mollie59. I am a liver/kidney transplant recipient. 8-9 years ago, when I became very ill...

https://connect.mayoclinic.org/comment/175606/

Discussion: Carcinoid liver cancer/carcinoid heart disease/ kidney damage

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2017

First time post here. Briefly, my wife started losing weight and feeling fatigued in the first...

https://connect.mayoclinic.org/comment/866425/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Get it removed asap. If it spreads your going to be in trouble. I have NET...

https://connect.mayoclinic.org/comment/810674/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Thank you Colleen. They have done following tests in order below Xray - saw a mass...

https://connect.mayoclinic.org/comment/794480/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2023

Neuroendocrine Tumors (NETs) Support Group