Neuroendocrine Tumors (NETs) Support Group

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Comments (2,370)

@worriedlovingwife When they say stage 4 terminal, does that definitely mean there is no hope of...

https://connect.mayoclinic.org/comment/292371/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2020

@meandmysis I was diagnosed with pancreatic cancer NETs, three 8cm tumors, that also have spread to...

https://connect.mayoclinic.org/comment/880674/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

MRI with contrast is the only way to go. I’m not sure the name of the...

https://connect.mayoclinic.org/comment/806725/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Welcome, @estrellita1. I moved your question about neuroendocrine tumor spreading to the liver to this related...

https://connect.mayoclinic.org/comment/1317129/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2025

I am seeing Dr Daniel Halperin, a NETS specialist, who was at MD Anderson and is...

https://connect.mayoclinic.org/comment/1184890/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

Wow hats off to you on your journey what an experience you learned from and handled...

https://connect.mayoclinic.org/comment/821372/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2023

Thank god for our multi discipline team of NET specialists, surgeons, chemo specialists, etc. they have...

https://connect.mayoclinic.org/comment/985488/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

@pete1962 Thanks for responding. I don’t remember your first post, if your diagnosis includes NET in...

https://connect.mayoclinic.org/comment/837367/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Hello @riffieli Your concerns are understandable. I have had three surgeries for NETs in the upper...

https://connect.mayoclinic.org/comment/787667/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

I guess Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma, multiple liver mets. Is the official diagnosis....

https://connect.mayoclinic.org/comment/698009/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

Hi Jon, I also have Gastrinoma PNET of Grade 1, Stage 1, well defined, functional tumor...

https://connect.mayoclinic.org/comment/1287366/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

I am 74 and was diagnosed last June with stage 4 neuroendocrine cancer grade 1, originating...

https://connect.mayoclinic.org/comment/1518565/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3 11:05am

That is really amazing and promising that it has stayed stable or away from the liver...

https://connect.mayoclinic.org/comment/1342329/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2025

Do you know how many liver tumors you had? I have 5 small ones grade one.

https://connect.mayoclinic.org/comment/1301254/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2025

Yes, it had already metastasized & was only determined to have been the point of origin...

https://connect.mayoclinic.org/comment/939544/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

I had robotic assisted liver debunking 9/6/22. Doctor said would help with the hormones being produced...

https://connect.mayoclinic.org/comment/789486/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2022

Yes. After my second embolization too. Just hang in there. Your liver is fighting all the...

https://connect.mayoclinic.org/comment/888145/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2023

Please do they are a great team of NEC doctors they did my liver resection surgery...

https://connect.mayoclinic.org/comment/1329072/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

I just read this comment. Did you ever get surgery for additional Mets in your liver?...

https://connect.mayoclinic.org/comment/1198871/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Dec 28, 2024

I too have pNET grade 2, stage 4 due to liver metastases, but have not heard...

https://connect.mayoclinic.org/comment/1062830/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

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