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Comments (417)
@californiazebra (Hit send by accident) the large 2.6 cm tumor was more likely to spread. I...
https://connect.mayoclinic.org/comment/1427894/
@jessie1990 I want to note that after reading so many stories of both GI NETs and...
https://connect.mayoclinic.org/comment/1427890/
Hello @oilyproudnana and welcome. It looks like your biopsy confirmed lung NETs. Is that correct? I...
https://connect.mayoclinic.org/comment/1392531/
I can’t say for sure if NET’s cause pain but from personal experience I will say...
https://connect.mayoclinic.org/comment/1357333/
My NET was primary in lung (Jan 2023) 3 cm and metastasized to liver stage 1,...
https://connect.mayoclinic.org/comment/1350571/
Hi @kole03 I hope you’re feeling well post lobectomy. You need to be followed by a...
https://connect.mayoclinic.org/comment/1328815/
@lkent I'm sorry that you have to go through this. While I'm not as well versed...
https://connect.mayoclinic.org/comment/1326346/
I have lung nets that were dx several years ago and biopsied at that time. I...
https://connect.mayoclinic.org/comment/1325579/
Im sorry to hear you are going through that. It is actually my brother. He had...
https://connect.mayoclinic.org/comment/1325183/
I was diagnosed with nets in April of 2020. The nets were in my right lung....
https://connect.mayoclinic.org/comment/1269123/
Neuroendocrine or NETs its called is rare. There are some good discussions about lung nets here....
https://connect.mayoclinic.org/comment/1262843/
@gprior Thank you for the response. You’ve been through a lot. I’m sorry to hear of...
https://connect.mayoclinic.org/comment/1224889/
Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....
https://connect.mayoclinic.org/comment/1220927/
In my experience every time I read the latest scans summary, it's a day of new...
https://connect.mayoclinic.org/comment/1219632/
Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...
https://connect.mayoclinic.org/comment/1208685/
This is my 6 years trying to get information for having Neuroendocrine Cancer, lung Nets! I...
https://connect.mayoclinic.org/comment/1203278/
Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...
https://connect.mayoclinic.org/comment/1198299/
Thank you for responding. I had no symptoms. But I had a positive colo-guard. Then I...
https://connect.mayoclinic.org/comment/1194306/
Hello @californiazebra, I really appreciate the chronology that you provided as you have been dealing with...
https://connect.mayoclinic.org/comment/1179350/
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
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