Neuroendocrine Tumors (NETs) Support Group

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I guess Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma, multiple liver mets. Is the official diagnosis....

https://connect.mayoclinic.org/comment/698009/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

Hi Jon, I also have Gastrinoma PNET of Grade 1, Stage 1, well defined, functional tumor...

https://connect.mayoclinic.org/comment/1287366/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

That is really amazing and promising that it has stayed stable or away from the liver...

https://connect.mayoclinic.org/comment/1342329/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2025

Do you know how many liver tumors you had? I have 5 small ones grade one.

https://connect.mayoclinic.org/comment/1301254/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2025

I am 74 and was diagnosed last June with stage 4 neuroendocrine cancer grade 1, originating...

https://connect.mayoclinic.org/comment/1518565/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3 11:05am

I had robotic assisted liver debunking 9/6/22. Doctor said would help with the hormones being produced...

https://connect.mayoclinic.org/comment/789486/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2022

Yes, it had already metastasized & was only determined to have been the point of origin...

https://connect.mayoclinic.org/comment/939544/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Yes. After my second embolization too. Just hang in there. Your liver is fighting all the...

https://connect.mayoclinic.org/comment/888145/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2023

Please do they are a great team of NEC doctors they did my liver resection surgery...

https://connect.mayoclinic.org/comment/1329072/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

I just read this comment. Did you ever get surgery for additional Mets in your liver?...

https://connect.mayoclinic.org/comment/1198871/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Dec 28, 2024

I too have pNET grade 2, stage 4 due to liver metastases, but have not heard...

https://connect.mayoclinic.org/comment/1062830/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

My SUV was much higher on a recent PET scan. Surgeon thought that was due to...

https://connect.mayoclinic.org/comment/1308545/

Discussion: Focal SUV levels ga68pet/ct… what does that mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2025

Did you have the small intestine net removed? Was the liver Mets found when you were...

https://connect.mayoclinic.org/comment/1216806/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

I have NET in my liver but was told chemo does nothing. Wondering if u also...

https://connect.mayoclinic.org/comment/1196008/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2024

PET Scan findings today: Confirms neuroendocrine on tail of Pancreas. No other neuroendocrines found. Ancillary chest...

https://connect.mayoclinic.org/comment/774829/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2022

I was diagnosed with a NET in my liver, the source of the tumor is in...

https://connect.mayoclinic.org/comment/749917/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...

https://connect.mayoclinic.org/comment/801569/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Not sure..since there are lesions in the liver they think it could be..the primary tumor is...

https://connect.mayoclinic.org/comment/967686/

Discussion: Anyone have stretching of the liver capsule?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

@kevinmonroemi Thanks for the concern! She also mostly has a healthy liver as well, just a...

https://connect.mayoclinic.org/comment/1422560/

Discussion: Anyone deal with severe pain after Y90 treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2025

So optimistic about this treatment modality! I have two questions. Has this treatment been successful on...

https://connect.mayoclinic.org/comment/1192687/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 18, 2024

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