Neuroendocrine Tumors (NETs) Support Group | Page 13

Lanreotide may help keep tumors stable which is why its often the first tool to reach...

https://connect.mayoclinic.org/comment/1448245/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2025

Did they remove the cancerous lymphnodes? I had SI NET removed along with 7 lymphnodes removed...

https://connect.mayoclinic.org/comment/1289168/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

Somatuline Depot is still available. Maybe ask your oncologist to write the prescription specifically for that...

https://connect.mayoclinic.org/comment/1335261/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2025

Bless her heart!!! I have experienced those moments too but the more I have been taking...

https://connect.mayoclinic.org/comment/1293372/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30, 2025

Yes, it is essential to have CT Scans every month and then every 6 months, and...

https://connect.mayoclinic.org/comment/1288579/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

Welcome, @mmercedesm. I'm tagging other members like @canuk @jonell @stevestenberg31 @nana120 @kc43 @kevinmonroemi, who have experience...

https://connect.mayoclinic.org/comment/1087298/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2024

I did lanreotide injections for about 3 years until it appeared that it was not as...

https://connect.mayoclinic.org/comment/1324845/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2025

That fact that you are already on Lanreotide should help in your recovery if you do...

https://connect.mayoclinic.org/comment/1271519/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2025

I have been taking Octreotide LAR 30mg for 8 years. I also have muscle fatigue and...

https://connect.mayoclinic.org/comment/1506871/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 10:50pm

My wife @kim1965 was diagnosed with NET on tail of pancreas and numerous tumors on liver...

https://connect.mayoclinic.org/comment/802307/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

I’m currently being treated with Lanreotide (2nd shot) at Mayo Jacksonville. I’ve had people tell me...

https://connect.mayoclinic.org/comment/827895/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 18, 2023

I had my 42nd lanreotide injection recently I’ve only had lethargy for a few days or...

https://connect.mayoclinic.org/comment/1196625/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is...

https://connect.mayoclinic.org/comment/1017449/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2024

This is a great news! Looks like Lanreotide is keeping the growth in check! I just...

https://connect.mayoclinic.org/comment/937359/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Thank you and my best for you as well. At this point my team, I and...

https://connect.mayoclinic.org/comment/1279927/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

Cabometyx (or cabozantinib) has been around since about 2010, recently approved for well-differentiated pNET and epNETs....

https://connect.mayoclinic.org/comment/1356064/

Discussion: New approved drug for pNETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

I am also going through the same thing but the tumors are through out (inside) my...

https://connect.mayoclinic.org/comment/1282983/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2025

Sounds as if your medical team has caught this before it forms into the tumor and...

https://connect.mayoclinic.org/comment/1496180/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 8:53am

It’s hard to determine which side effects were due to the chemo (pill version) or the...

https://connect.mayoclinic.org/comment/826544/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

Lots of ways you could go. I had Folfox through a chemo port (6 cycles) then...

https://connect.mayoclinic.org/comment/1326528/

Discussion: Scan shows interval progression on lanreotide: Is CAPTEM next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025