Neuroendocrine Tumors (NETs): Discussions | Page 12

We actually never had trouble getting help. His pnet was found incidentally and we’ve only seen...

https://connect.mayoclinic.org/comment/979642/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Thank you for your information of how your PNET was handled. While I am sure surgery...

https://connect.mayoclinic.org/comment/1354581/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23 11:35am

A team at MAYO have looked at my scans and test results I have sent them...

https://connect.mayoclinic.org/comment/1041280/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2024

Yesterday I had a 3 month follow up scheduled to see the NET specialist in St....

https://connect.mayoclinic.org/comment/1032859/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2024

Hi 👏 from AU. My partner (x army) was going to have his hernia repaired so...

https://connect.mayoclinic.org/comment/921716/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2023

Hi Jon, I also have Gastrinoma PNET of Grade 1, Stage 1, well defined, functional tumor...

https://connect.mayoclinic.org/comment/1287366/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 9:10am

Hi @donnarushing55 I’m sorry you’re going through this. Even if you were comfortable with a specialists...

https://connect.mayoclinic.org/comment/1000560/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2024

Hi vtn. I agree with what has been previously said. You have some people in here...

https://connect.mayoclinic.org/comment/859271/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Hi Ken, I had a 5 cm PNET removed in March 2023. So, a year and...

https://connect.mayoclinic.org/comment/1083388/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2024

Hi, see above on 7/11 from me previously in re: to history. Stage 4 PNET, with...

https://connect.mayoclinic.org/comment/1109828/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

Hello, mamandneuroendocrine! I was in a similar situation. My pNET was discovered accidentally during a stroke...

https://connect.mayoclinic.org/comment/953478/

Discussion: Metastatic NeuroEndocrine Grade 3 - ki 80% -

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Hello @ beaglebass! My pNET is functioning, so my story may not be too close to...

https://connect.mayoclinic.org/comment/1065411/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

Hi Sue! I too was in the situation of watching waiting, which I did for 6mos....

https://connect.mayoclinic.org/comment/1356627/

Discussion: New PNET Question Re: Surgery (I'm in bit of a pickle)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26 7:16am

Kim1965, I was very interesting to read about your wife’s case. Sounds very similar to mine...

https://connect.mayoclinic.org/comment/932191/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2023

Hello @carm1011 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/890939/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2023

I totally understand the desire for a conservative approach. While there is likely a primary somewhere,...

https://connect.mayoclinic.org/comment/1157998/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2024

@mcjelly, welcome. If you have read about a diet or supplement that claims to "cure" advanced-stage...

https://connect.mayoclinic.org/comment/980004/

Discussion: Can intermittent fasting and Keto diet help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

My best advice is to have the surgery if your doctor recommends it. Don't be afraid...

https://connect.mayoclinic.org/comment/902822/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2023

Oh my goodness! I'm so sorry you have to go through this. It sounds like you...

https://connect.mayoclinic.org/comment/1332307/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 9:04pm

My sister was diagnosed with PNET. They went in to do the surgery to remove half...

https://connect.mayoclinic.org/comment/780856/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 4, 2022

Neuroendocrine Tumors (NETs) Support Group