Neuroendocrine Tumors (NETs): Discussions | Page 12

@gmapam Your NETs oncology team should be able to tell you. You need to have somatostatin...

https://connect.mayoclinic.org/comment/912394/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2023

Hi @grec I shared my details earlier in the thread if you want to scroll back....

https://connect.mayoclinic.org/comment/1048486/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

Hi @dak10 and @mimmy. Thank you for sharing your lung NETs info. I also have typical...

https://connect.mayoclinic.org/comment/835869/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Hi @dougmck Are your lung nodules typical carcinoids, other lung cancer or small benign nodules? DIPNECH?...

https://connect.mayoclinic.org/comment/1206138/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7, 2025

Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...

https://connect.mayoclinic.org/comment/851198/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

@anasashesh87 I am only speaking from personal experience. cancer. Long before anything turned up on scans,...

https://connect.mayoclinic.org/comment/1496371/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 12:06pm

Hello @jessie1990, and welcome to the NETs support group on Mayo Clinic Connect. Carcinoid tumors are...

https://connect.mayoclinic.org/comment/1426976/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

Hello @kdgranger and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/945546/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 10, 2023

@gprior Thank you for the response. You’ve been through a lot. I’m sorry to hear of...

https://connect.mayoclinic.org/comment/1224889/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2025

Hi mcohan, I recommend LACNETS.org for tons of info on NETS. It's a support organization, not...

https://connect.mayoclinic.org/comment/844935/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Thank you for responding. Yes, you do have a lot going on, definitely more than just...

https://connect.mayoclinic.org/comment/834751/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2023

Hi Mike @mikecincy Sorry to hear you've joined the NETs club. It looks like you're doing...

https://connect.mayoclinic.org/comment/885633/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Hi @kristin3, I have over 50 typical carcinoid tumors/DIPNECH across both lungs. Because I have so...

https://connect.mayoclinic.org/comment/849316/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Apr 25, 2023

Hi @splendrous 2008-2010: they didn't know what the 50+ nodules were, benign or cancer, so many...

https://connect.mayoclinic.org/comment/1179339/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

@nannybb My breast cancer is your most common hormone driven kind. Even though stage 1, I...

https://connect.mayoclinic.org/comment/1432536/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

Hi @pattirushing, octreotide and microwave ablation are the only two treatments I've had for my typical...

https://connect.mayoclinic.org/comment/845209/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

@californiazebra looks like you are in CA? Who are your specialists? I am recently diagnosed with...

https://connect.mayoclinic.org/comment/1526053/

Discussion: What is the surveillance protocol for typical pulmonary NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13 12:27pm

I also have the same condition . I am 72 , diagnosed 8 years ago ....

https://connect.mayoclinic.org/comment/1142709/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

I am coughing up blood tinged phlegm every day. This is how it was found. At...

https://connect.mayoclinic.org/comment/1048206/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

I was diagnosed last year with a lung tumor and had my left lower lobe of...

https://connect.mayoclinic.org/comment/1314408/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2025

Neuroendocrine Tumors (NETs) Support Group