Neuroendocrine Tumors (NETs): Discussions | Page 11

My large tumor is in the liver. Anyone know of how that size located there is...

https://connect.mayoclinic.org/comment/1203264/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3 3:12pm

MRI every 3 months w/ and w/o contrast substance. I've been told safer and better for...

https://connect.mayoclinic.org/comment/1207619/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 11:38am

I too have grade 2 NET liver metastasis but there was no mention of necrosis. Sorry...

https://connect.mayoclinic.org/comment/1062149/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

My wife was diagnosed in April 2022, with NET with primary on pancreas, and too many...

https://connect.mayoclinic.org/comment/1207477/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 9:34am

I'm stage 4 pancreatic and liver cancer, tail end pnets I've had no surgeries,radiation very little...

https://connect.mayoclinic.org/comment/803506/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

Hi! Thank you for your comment. I'm petite, and I think I'm going to change my...

https://connect.mayoclinic.org/comment/1376539/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22 9:16am

@tomrennie Thank you for sharing. What stage Pnets to tbe liver or grade did you have?...

https://connect.mayoclinic.org/comment/1251236/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 4:43pm

Dr was unable to get a clear view with the CT so he ordered a GA68...

https://connect.mayoclinic.org/comment/1308050/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 6:11pm

I have stage 4 NET pancreatitis to liver cancer. Also had trouble with sugar levels dropping...

https://connect.mayoclinic.org/comment/934290/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Interesting. I too am at Mayo JAX. I wonder why you are being treated for your...

https://connect.mayoclinic.org/comment/831958/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Thank you everyone for your support I will be getting the liver embolization tomorrow I opted...

https://connect.mayoclinic.org/comment/795493/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Must be. My pancreatic tumor and largest liver lesion started off around the same size 8x6cm....

https://connect.mayoclinic.org/comment/1356881/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26 10:53am

Thank god for our multi discipline team of NET specialists, surgeons, chemo specialists, etc. they have...

https://connect.mayoclinic.org/comment/985488/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

I also have NET’s in my liver, I am on monthly octreotide injections. I have not...

https://connect.mayoclinic.org/comment/883630/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

To answer your question, yes if it spreads (metastasized) I have it in my liver, mesentery,...

https://connect.mayoclinic.org/comment/1238682/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 8:12pm

Here is another post about it. - Has anyone out there tried Histotripsy for tumors in...

https://connect.mayoclinic.org/comment/1192134/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2024

Thank you for your response and treatment info. It seems a good thing that you have...

https://connect.mayoclinic.org/comment/814505/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

They did not do a CA-19 test after surgery. And when I went to see my...

https://connect.mayoclinic.org/comment/1227405/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 7:09am

That is great that you had good results with Y90 and you toldetsted well. My husband...

https://connect.mayoclinic.org/comment/1338056/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29 6:44pm

Hi @ahtaylor Good to hear that your liver panels have been normal, that seems to be...

https://connect.mayoclinic.org/comment/829501/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Neuroendocrine Tumors (NETs) Support Group