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Comments (2,370)
Vein issue explained - but ongoing growth of liver tumor(s) means have to try new approach
https://connect.mayoclinic.org/comment/1328757/
Sorry I have been diagnosed with metastasized liver NETs don’t know where the primary is as...
https://connect.mayoclinic.org/comment/727433/
I just had a PET scan Wednesday and in the test results I was also diagnosed...
https://connect.mayoclinic.org/comment/1376470/
I have Liver & Pancreatic Liver Since July last year , They tried 2 tips of...
https://connect.mayoclinic.org/comment/1400437/
@nana120, I love your new profile picture - your Halloween zebra costume is perfect. In addition...
https://connect.mayoclinic.org/comment/1179425/
Have an insulinoma (diagnosed 12/23) and have had many types of treatment including pancreatic surgery in...
https://connect.mayoclinic.org/comment/1336437/
Hello from Indiana. I was diagnosed in August with a NET in my intestine. Pet scan...
https://connect.mayoclinic.org/comment/763826/
This page is active I watch the comments and jump in when appropriate. Great way to...
https://connect.mayoclinic.org/comment/1463460/
@ricki8: I would love to learn about your Histotripsy procedure for Liver Mets, since I have...
https://connect.mayoclinic.org/comment/1465624/
Thank you for your encouragement. The exhaustion comes & goes. The primary is a carcinoid, very...
https://connect.mayoclinic.org/comment/977617/
UPDATE... NET specialist says I'm lucky. And rare as my SBNETs does not seem to have...
https://connect.mayoclinic.org/comment/1224979/
Hi Billyfeet, I was diagnosed in 2012 with a NET on the head of the pancreas...
https://connect.mayoclinic.org/comment/842404/
Hi Joy, each case of NET is different. I can share our case to give you...
https://connect.mayoclinic.org/comment/952987/
Hi Neuroendocrine Group, I am Neuroendocrine Breast Cancer (rare) with mets in liver and bones. It...
https://connect.mayoclinic.org/comment/766898/
Hello @dbamos1945, I understand that you are looking to connect with others who have had NET...
https://connect.mayoclinic.org/comment/775970/
I have been having the monthly injections of Octreatide. (Sp?) for about a year. It also...
https://connect.mayoclinic.org/comment/1303282/
@shirleyslominski mine started in my gut in 1996 and are now in my liver. I have...
https://connect.mayoclinic.org/comment/1532205/
Hi, breck from Iowa! I’m from Florida, have NETS in my liver and small intestine.. Welcome!
https://connect.mayoclinic.org/comment/1169290/
How was his liver debulking surgery? How long ago was it? What grade is he and...
https://connect.mayoclinic.org/comment/898937/
He’s done blood work and says it’s okay even though liver enzymes are high and WBC...
https://connect.mayoclinic.org/comment/728985/
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