Neuroendocrine Tumors (NETs): Discussions | Page 11

Good morning all, I have NET, pancreas to liver. I don’t have diabetes but the numerous...

https://connect.mayoclinic.org/comment/836139/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

I have NET metastasis liver cancer I have been told by 3 drs that they don’t...

https://connect.mayoclinic.org/comment/835279/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

The Y 90 treatment was to my husband‘s liver, 1/2 at a time, after a mapping...

https://connect.mayoclinic.org/comment/1055461/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 4:02pm

I had severe stomach pain for years, VA doctor gave me acid reflux medicine and been...

https://connect.mayoclinic.org/comment/879728/

Discussion: Adenocarcinoma with Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

My wife was diagnosed with NET with mass on tail of pancreas, and too many tumors...

https://connect.mayoclinic.org/comment/866558/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Hello..I am 29 yr old boy from India diagoned with net tumor in small bowel and...

https://connect.mayoclinic.org/comment/786092/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Hello, how long since you were originally diagnosed with NETs? I am trying to determine what...

https://connect.mayoclinic.org/comment/952977/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Hi @meppard , I am hoping to get into a Rova-T clinical trial too. I have...

https://connect.mayoclinic.org/comment/184367/

Discussion: Treatment for Stage IV Ampullary Cancer

Support Group: Cancer

Posted: Feb 8, 2018

If the cancer has not metastasized and they are willing to do the surgery it is...

https://connect.mayoclinic.org/comment/1088907/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 5:55am

I had PRRT for metastatic tumors in my liver. The plan is no treatment until they...

https://connect.mayoclinic.org/comment/1060197/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1 9:26am

I went on to Ocreotide The first 3 injections I had side effects that weren’t so...

https://connect.mayoclinic.org/comment/868253/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

I totally understand the desire for a conservative approach. While there is likely a primary somewhere,...

https://connect.mayoclinic.org/comment/1157998/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16 10:50am

Hello @willam and welcome to the NETs support group on Mayo Connect. You ask an interesting...

https://connect.mayoclinic.org/comment/883410/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

I have metastatic liver NETs (secondary to pancreatic), have been on the shot for a year...

https://connect.mayoclinic.org/comment/927801/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2023

Yes the oncologist sent me to palliative care but I really hate pain pills. They just...

https://connect.mayoclinic.org/comment/718894/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Jun 19, 2022

Hi @harley4650 Deciding on PRRT, or any type of chemotherapy, is a big decision. Getting more...

https://connect.mayoclinic.org/comment/753432/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

Day 4 update - as she transitioned from ice chips to Italian ice and Apple juice,...

https://connect.mayoclinic.org/comment/821091/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2023

Hi Joni, Hope you were able to get more of your questions answered during your zoom...

https://connect.mayoclinic.org/comment/670199/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2022

Hello @avawein I know you were scheduled for liver surgery on 10/21. I hope that all...

https://connect.mayoclinic.org/comment/647730/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2021

I have a NET but what’s a pNET? I have liver metastasis too. Could you tell...

https://connect.mayoclinic.org/comment/1071566/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20 10:25am

Neuroendocrine Tumors (NETs) Support Group