Neuroendocrine Tumors (NETs) Support Group

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Comments (200)

Hi I was diagnosed in June of2021 with lung to liver net Ki67 1-5% with two...

https://connect.mayoclinic.org/comment/813436/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

@skkirby Hello Sherry, Sharing your experience here on Mayo Connect is encouraging for many who are...

https://connect.mayoclinic.org/comment/806376/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2023

Hello @tonyhasumners and welcome to the NETs discussion group on Mayo Connect. I moved your message...

https://connect.mayoclinic.org/comment/804469/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Diagnosed 1/27/23 lung NET Bronchoscope on 1/24/23 results on 1/26/23 lymph nodes chest ok but nodule...

https://connect.mayoclinic.org/comment/803360/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

My sister and I both ended up with this in our lung. We, both, found out...

https://connect.mayoclinic.org/comment/801184/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2023

Hello @jacqquie, As you probably know, Squamous Cell Carcinoma is a type of skin cancer. Here...

https://connect.mayoclinic.org/comment/798257/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2023

Welcome, @4237220. I agree with @maya8238 that it sounds like the cancer has been caught early...

https://connect.mayoclinic.org/comment/797237/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

I was diagnosed with atypical carcinoid neuroendicrine tumors in March of 2022. I underwent surgery to...

https://connect.mayoclinic.org/comment/793653/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Where did you do the trial at in Florida? Currently I am with Moffitt Cancer Center,...

https://connect.mayoclinic.org/comment/749790/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

Just recently went to Mayo for continued evaluation. The Oncologist there agreed that my symptoms were...

https://connect.mayoclinic.org/comment/271254/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2019

Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....

https://connect.mayoclinic.org/comment/1198328/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Hi @mimi206 I have DIPNECH and lung NETs (typical carcinoids) with 50+ nodules so we are...

https://connect.mayoclinic.org/comment/1250591/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 7:24pm

I was diagnosed with DIPNECH in November 2024 after a segmental left lung resection for 3...

https://connect.mayoclinic.org/comment/1250339/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 12:12pm

I was diagnosed with a .4c rectal carcinoid in 2000 and a recurrence in 2010. Four...

https://connect.mayoclinic.org/comment/134276/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

Hello @ghassan and welcome to Mayo Connect. I appreciate your sharing about your lung carcinoid. While...

https://connect.mayoclinic.org/comment/134274/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...

https://connect.mayoclinic.org/comment/137542/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

Hello @gapsc and welcome to Mayo Connect I am Teresa, a volunteer mentor with Connect and...

https://connect.mayoclinic.org/comment/134268/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2018

@dzertas, I did a little research and found this website that you might find helpful. It...

https://connect.mayoclinic.org/comment/134264/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2017

I can only answer for lung. If you have a carcinoid tumor in your lung, the...

https://connect.mayoclinic.org/comment/1254782/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 12:20pm

I do not have experience with ostricide shots but usually given it prior to any medical...

https://connect.mayoclinic.org/comment/1266755/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 4:57pm

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