Neuroendocrine Tumors (NETs) Support Group

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Comments (231)

I was diagnosed in November with a 5.5CM NET at the head of my pancreas and...

https://connect.mayoclinic.org/comment/1584299/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 7:15am

@htam4, Hello! My tumor was in the tail of the pancreas entangled with the spleen, so...

https://connect.mayoclinic.org/comment/1097804/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2, 2024

@pontiac - thanks for your post! I completely understand your frustrations! After my Whipple procedure in...

https://connect.mayoclinic.org/comment/831222/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

@bnjncrew - welcome to the NET insulinoma group. There are several on or around this page...

https://connect.mayoclinic.org/comment/831029/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Yesterday I had a 3 month follow up scheduled to see the NET specialist in St....

https://connect.mayoclinic.org/comment/1032859/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2024

Hi Jon, I also have Gastrinoma PNET of Grade 1, Stage 1, well defined, functional tumor...

https://connect.mayoclinic.org/comment/1287366/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Greetings! Thanks for the post. I am happy to connect with you. I have been dealing...

https://connect.mayoclinic.org/comment/799602/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

The treatment plan that was discussed with me in 2018 for my NETs was Whipple surgery,...

https://connect.mayoclinic.org/comment/898267/

Discussion: NET's and possible liver transplant discussion

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

My oncologist does not recommend a surgery because my proscatic cancer has spread to liver, lung...

https://connect.mayoclinic.org/comment/1232046/

Discussion: How much can it cost for (MiNEN) surgery at Mayo Clinic?

Support Group: Visiting Mayo Clinic

Posted: Feb 8, 2025

Whipple surgery usually involves the pancreas and gallbladder. Often done due to growths on the pancreas...

https://connect.mayoclinic.org/comment/1531682/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Mar 20 6:54pm

Hi, So nice to hear your story. I can relate. I recently had a endoscopy EUS...

https://connect.mayoclinic.org/comment/907215/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Hi gchezick! So glad you reached out to our Whipple community for answers. I too experienced...

https://connect.mayoclinic.org/comment/694078/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2022

I had explosive diarrhea also not a fun thing to deal with! I get the lanreotide...

https://connect.mayoclinic.org/comment/1287554/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Hello @ahtaylor: It is always good to have a new member, welcome to the NET group!...

https://connect.mayoclinic.org/comment/134614/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2017

Hello @billb720301, and welcome to this discussion group on eating after digestive tract surgery. As you...

https://connect.mayoclinic.org/comment/1481987/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 14 9:09am

Bob, To provide some additional information. . . I have had 2 surgeries - a modified...

https://connect.mayoclinic.org/comment/806975/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

My tumor was around the tail of the pancreas, so I had distal pancreatectomy and splenectomy....

https://connect.mayoclinic.org/comment/1088225/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

I was diagnosed at Stanford by Dr. Jeffrey Norton and his team. I have a genetic...

https://connect.mayoclinic.org/comment/1315141/

Discussion: New PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2025

I was diagnosed with a NET on the head of my pancreas at 42, after 6...

https://connect.mayoclinic.org/comment/783855/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 12, 2022

My husband is receiving Folfirinox chemotherapy post Whipple surgery for pancreatic cancer. At their worst, his...

https://connect.mayoclinic.org/comment/265622/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 24, 2020

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