Neuroendocrine Tumors (NETs) Support Group

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Comments (269)

Hi @ahtaylor -- I love your motto! I have always loved the "Never Give Up" poster...

https://connect.mayoclinic.org/comment/867775/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

@hopeful33250 Hi Teresa, You are correct that they did not suggest surgery for me. The reason...

https://connect.mayoclinic.org/comment/861413/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...

https://connect.mayoclinic.org/comment/854586/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...

https://connect.mayoclinic.org/comment/844936/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Hi billyfeet, I had two NETs on the tail of my pancreas both over 2 cms....

https://connect.mayoclinic.org/comment/842530/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Hi @bcraft. I'm new to this site too and what brought me here was a search...

https://connect.mayoclinic.org/comment/838450/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2023

Hello @pattirushing and welcome to the NETs discussion on Mayo Clinic Connect. If you are comfortable...

https://connect.mayoclinic.org/comment/831600/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hi, my lung nodule was found incidentally. I had a benign lipoma removed from my abdomen,...

https://connect.mayoclinic.org/comment/827217/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

I, too, have high grade (2/3) metastatic NETs—liver, pancreas, lungs, bone, adrenal gland, parotid gland. I...

https://connect.mayoclinic.org/comment/811356/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

We live in Orlando Florida. Mom came to the ER of Orlando Health Hospital thinking she...

https://connect.mayoclinic.org/comment/804283/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...

https://connect.mayoclinic.org/comment/801569/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

I think you would be making another trip. I’d call and inquire. Your surgeron team should...

https://connect.mayoclinic.org/comment/772109/

Discussion: Might we have to Travel Twice to Mayo?

Support Group: Visiting Mayo Clinic

Posted: Nov 11, 2022

I have been with Mayo in Rochester since Feb 2020. I have grade 3 NETs in...

https://connect.mayoclinic.org/comment/765344/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2022

Hello @kathryncd and welcome to Mayo Connect. I am sorry to hear of this new finding...

https://connect.mayoclinic.org/comment/764453/

Discussion: NED GI NETS since 2012. New finding on annual chest CT, Tubular Mucoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

NuB The VA sent me to a cancer clinic close to my home. I did not...

https://connect.mayoclinic.org/comment/764213/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2022

I was diagnosed with a 1.7cm NETs nodule in my left lung first part of September....

https://connect.mayoclinic.org/comment/755085/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2022

Mel, I responded to you in another discussion but thought I might answer your question here...

https://connect.mayoclinic.org/comment/753729/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2022

I hope your issues resolve quickly and the plan goes well. This past year I've had...

https://connect.mayoclinic.org/comment/749896/

Discussion: Intestinal Blockage with NETs: Anyone else?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

I will say a prayer for you! I am wondering if by any chance your Dr....

https://connect.mayoclinic.org/comment/747813/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2022

@hopeful2, I add my welcome along with Teresa's. You'll notice that I moved your post to...

https://connect.mayoclinic.org/comment/718967/

Discussion: Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2022

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