Neuroendocrine Tumors (NETs) Support Group

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Comments (185)

@tomrennie she has had pain on and off for over 3 years. Multiple CTs and then...

https://connect.mayoclinic.org/comment/1541630/

Discussion: Neuroendocrine tumors in small bowel, omentum, on ovaries, appendix

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3 5:02am

It took 6 months for Drs to find my SI NET. Finally diagnosed after a CT/PET...

https://connect.mayoclinic.org/comment/1459460/

Discussion: Did anyone else have a long struggle to getting a NETs diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 12, 2025

Welcome, @sandip. I moved your message to this existing discussion: - Neuroendocrine tumor in small bowel...

https://connect.mayoclinic.org/comment/873174/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

Hello Everyone Has anybody ever had a Small bowel resection and whats the recovery like.

https://connect.mayoclinic.org/comment/1271054/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2025

I just visited Mayo Rochester. Was diagnosed in April 2023 with Neuroendocrine cancer of the small...

https://connect.mayoclinic.org/comment/873758/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

Hi. I have had 4 hospitalizations for small bowel blockages plus partial blockages. Hope to see...

https://connect.mayoclinic.org/comment/1404149/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Sep 29, 2025

@dbjoyce Agree! I had a small bowel obstruction in 2022, pathology confirmed SB NETS & 4...

https://connect.mayoclinic.org/comment/1556240/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

@zalda, I'd like to add my welcome. I'm glad that fellow NETs members like @mimisayhi and...

https://connect.mayoclinic.org/comment/1026156/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

The shots have not affected my balance. I do suspect a little diarrhea a day or...

https://connect.mayoclinic.org/comment/1532074/

Discussion: i am taking the shot "L"

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 11:50am

I would be interested in information on how to combat adhesions. I have had for bowel...

https://connect.mayoclinic.org/comment/800259/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Hello..I am 29 yr old boy from India diagoned with net tumor in small bowel and...

https://connect.mayoclinic.org/comment/786092/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Hello, I have a constant headache and coughing since after my small bowel resection. Is it...

https://connect.mayoclinic.org/comment/790239/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2022

panorman3, I think I mentioned it on your "best procedure" thread. Specifically I had a small...

https://connect.mayoclinic.org/comment/1311797/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2025

I had a small bowel obstruction & resection was performed by a general surgeon at Springfield,...

https://connect.mayoclinic.org/comment/1371220/

Discussion: Surgery on Small Intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2025

i just had surgery for a NET in my illeum (end of small bowel but surgeon...

https://connect.mayoclinic.org/comment/1022718/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

My origin was small bowel & 4 lymph nodes resected in 2022. In 2024 it reoccurred...

https://connect.mayoclinic.org/comment/1384654/

Discussion: Experience w liver metastasis & new small tumor peritoneal cavity

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2025

@hopeful33250 Results from my Dotatate Scan are back. It doesn't seem so good but it probably...

https://connect.mayoclinic.org/comment/1539723/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 2:02pm

I was diagnosed with multiple Net’s in the small bowel, and 16 Net’s on my liver...

https://connect.mayoclinic.org/comment/1023918/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2024

If you don't mind sharing, is your husband currently getting treatment for the NETs? I also...

https://connect.mayoclinic.org/comment/1311557/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2025

I tolerated CAPTEM very well for 5 months and only went off it when there was...

https://connect.mayoclinic.org/comment/1358618/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2025

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